John’s Story

Site created on May 16, 2018

Thanks for visiting my CB site. I'm using it to keep family and friends updated about my condition. I've been at the Ames (Iowa) Family Hospice House since May 3, 2018. I am dying from  cirrhosis of the liver and complications due to alcoholism. Here's some background:

In February 2017 I was hospitalized and almost died from liver failure. For more than 30 years, I had kept my drinking problem a secret. Not even my family knew about it. I was what they call a high functioning alcoholic. But this hospitalization changed everything. Suddenly I had to tell my family. It was a huge relief to get it out in the open. When I recovered enough to return home and eventually to work, I decided to "come out" about my drinking problem. This CB page is part of that process.

Since that crisis, my health has been very shaky, with ups and downs and additional hospital stays. From the beginning my internist, Dr. Jason Kruse at Broadlawns Medical Center in Des Moines, was clear that without a new liver I would, in his words, "tank," and probably sooner rather than later. Thanks to his fabulous care, I've  been able to  continue working and mostly to manage my symptoms while applying to be placed on a liver transplant waiting list through the University of Iowa Hospitals. And I've discovered that life can be pretty darn good even without drinking and on a low-sodium diet.

But then a blow: Last month, after weeks of tests and evaluations, I learned that I do not qualify for a liver transplant through the Iowa City transplant program. I have a serious heart condition that makes the surgery too risky. 

I've found some peace with my situation through the words of my favorite atheist, Richard Dawkins (see https://www.goodreads.com/quotes/83303-we-are-going-to-die-and-that-makes-us-the), and through Carl Sagan's philosophy about human existence (see https://www.youtube.com/watch?v=RESsY2y8G2s ). I'm also inspired by my dad's courageous and grateful approach to his own death in December 2014.

In late April I was hospitalized again because of kidney problems directly related to the liver disease. My condition deteriorated quickly. The only thing that could save me was an immediate liver transplant, which my heart couldn't handle and I was too sick to survive. 

So, here I am in hospice. 

When I arrived here I had been "out of it" for about 36 hours, and my family was told I might live only a few days. But my condition has actually improved a little. I'm mostly awake and alert and am able to get back on the computer for short periods of time. I really enjoy visitors and hearing from friends and family. 

Thank you to everyone who's helping me on my final journey.

Newest Update

Journal entry by John Brink

Des Moines Register
Sioux City Journal
Cherokee Times Chronicle
O'brien County Bell
Ames Tribune

John Robert Brink of Des Moines, Iowa, died on May 28, 2018, at Israel Family Hospice House in Ames from complications of cirrhosis of the liver. He was 56. A Celebration of Life service will be held at 1:30 p.m., Sunday, June 3, at First Unitarian Church, 1800 Bell Ave., Des Moines. The service will include an informal time for anyone who wishes to share stories and memories about John.

John was the youngest of five children born to Harry and Kathryn (Kitty) Brink, then of Sutherland, Iowa, and later of Cherokee. He attended Westmar College in LeMars, the University of Kansas in Lawrence, and Western Iowa Tech Community College in Sioux City. He worked at various jobs for organizations in the Sioux City and then the Des Moines areas, including Long Lines in Sergeant Bluff, Pine Ridge Farms in Des Moines, and most recently Ventech Solutions in Urbandale.

John never married, but his life was greatly enriched by his hobbies, primarily music, photography, kiting, and movies, and by his relationships with family, friends, and co-workers. He was also a serious armchair philosopher and enjoyed the benefits of social media for discussing politics, science, and religion (especially his devout lack of it) and for following his favorite thinkers and speakers.

John’s cirrhosis was diagnosed in February 2017 when complications of the disease almost killed him. Up until then he had been a high-functioning, closet alcoholic who drank alone and rarely missed a day of work. That crisis kicked him out of the closet, and he became an open book about alcoholism. His greatest wish would be fulfilled if someone got help to stop compulsive drinking because of his story.

John did not qualify for a liver transplant because of a heart problem called pericardial calcification. The cardiac condition was puzzling, because he was so loved for his soft heart. He was also loved for his dry humor, penetrating intellect, and blunt appraisal of “truths” that many people do not take time to examine.

Harry and Kitty and John’s brother Steve did not live to see John’s final challenge. John’s sisters and brother-in-law—Barb Gilliand of Burnsville, MN, Chris and Craig Struve of Spirit Lake, and Marcia Brink of Ames—feel privileged to have been partners in his struggle and to have witnessed the grace and courage with which he died. They are forever grateful to so many of John’s nieces and nephews, cousins, friends, co-workers, health professionals, and others who have participated in his journey, particularly Dr. Jason Kruse at Broadlawns Medical Center, Deana Schuplin of the Everest Institute, the members of John’s Alcoholics Anonymous group for atheists and agnostics, and the caring and gentle staff of Israel Family Hospice House.

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