Joe’s Story

Site created on June 7, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Joe & Beth Bates

Nearly a year has passed and my current triplet treatment plan is working as a charm.  My light chain ratio has remained under 0.10 since February.  A bone marrow biopsy in April showed myeloma cells at 0.4%.  An October Biopsy found no measurable value. In October I begin my 25 month on this treatment plan.

My immune system remains high compromised,   The treatment has a debilitating effect on my energy levels.  I plan to do what I can on good days and chill out on bad days.  I was able to join a weeklong celebration with my brothers and I did quite well by pacing activities and rests.  

We will continue on the current plan until is begins to lose its magic powers.  By the time that happens we hope that the FDA will have approved CAR-T Therapy for patients in my situation.  Froedert has become a leader for providing that treatment.

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