Jim’s Story

Site created on November 3, 2019

Welcome to our CaringBridge website. We will use this site to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


Fifteen years have passed since Jim was diagnosed with esthesioneuroblastoma.  He survived an extensive surgery to remove a fast-growing tumor from his sinus cavity and brain in 2004 and underwent chemotherapy and radiation.  Since then he was able to experience many milestone moments with his family.  In 2017 he began experiencing complications from the prior radiation treatments.  The radiation to the head caused damage to the bone and compromised his facial structure leading to frequent infections.  Following a hospital stay for sepsis in spring of 2019, it was determined surgery was needed to correct the damage to his nose to prevent further infections.  During a surgery in July 2019, Jim's doctors discovered the damage extended beyond his nasal cavity and included the bone of the forehead.  On October 25th, 2019 the same surgeon who removed Jim's tumor in 2004 removed his infected forehead bone.  The infection and damage was more extensive than previously thought.  The barrier to his brain was compromised and leaking spinal fluid.  The surgeons removed tissue from his leg to patch the barrier and fill the cavity.  Jim recovered well in the ICU and was in good spirits.  October 27th he began to leak CSF from the repair site and the decision was made for him to return to surgery on November 4th for a vascular reconstruction.  He will remain on IV antibiotics  for 6 weeks to treat the initial infection and prevent further infections while the new graft heals.  Over the next 3-6 months the repair will be monitored and determinations will be made if additional surgeries are required.

Newest Update

Journal entry by Ava Archibald

Happy New Year!  Jim and I had a great end to our year of 2019 as his Dr. appointments in Mayo could not have gone better yesterday.  His white blood cell counts dropped again, and his inflammatory markers dropped considerably.  The inflammatory markers are not yet in the normal range but were very encouraging.  After reviewing his lab work and many questions by two different infectious disease doctors, I think Jim surprised them on his improvement and they decided at the end of the day to discontinue the antibiotic infusions and as a precautionary measure have him on oral antibiotics until he returns in mid-February.  They explained that with everything that has happened since October it may take Jim a few months to gain his strength back and they will want to monitor him closely for the next six months.   As to his pulmonary embolisms, time will tell if this is a lifetime concern or if this was something that came about due to the hospital stays and the acute infections.   No news is good news so we are hoping that this will be our final entry on CaringBridge.   We are excited for the New Year and wish everyone a Happy and Healthy 2020. 

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