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Jun 16-22

This Week

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Hi!

We got a bunch of good news when we went to Houston.  I went with my in-laws and the whole trip was about 1 1/2 days which was wonderful.  I had plans to go for the week if necessary but it was really nice to get back home the next day and surprise Gunnar.  No Chemo and watch and wait for now. I had my third CT Scan and we see no growth at this time.

While I still have my moments, I'm just rolling with it.  I give myself time to be sad.  My family has been amazing.  All of them.  My friends too! As far as work goes I am not sure when I am going back to work at this time.  

I am working on documenting everything as it happens.  I have come to the conclusion that while some of the information I was able to find was decent, it lacked so much important information.  Since I have that information now it seems important to share it any way that I can.  Even if it helps one person then it makes it worth it to me!  https://fightehe.org 

I make doctor appointments at the Wellness Center at Apple so that I can feel normal at least once a week and go into Apple.  It never fails I run into someone that I wanted to see.  Maybe because I want to see everyone.  

Right now I am working on spending more quality time with Jeff and G and the rest of my family. We make small family trips at the spur of the moment (two of them so far which is pretty good for us).  Gunnar is such an easy kid.  He loves to stay at hotels and he is really easy to please with mini trips. 

Medically, I feel pretty good.  I get tired when I try to do too much and I have to remind myself constantly that I need to limit my talking which for me is really hard.  No chemo for the time being which is REALLY nice.  People can live a really long time with this...decades...but it is all about self-care and keeping my stress levels low.  My neighbor has been so helpful with this.  We have coffee together three mornings a week and just talk.  She told me the other day that sometimes you accept help to make others feel better.  They want to feel like they are helping you.  Doing something.  This is so against my normal thought process (for myself) that we had a pretty long discussion about it.  In the end, she was right.  I would do anything for anyone that is within my power to help someone in a similar situation to me.  I need to treat myself as well as I would treat others.  

We are doing pretty good with the food changes.  It is a hit or miss type of thing still with food but we have some favorites that we all love now.  It's easy to forget when I feel good that I need to still take care of myself first.  I am seeing a therapist.  It is now 2:00 am and I probably need to go back to sleep so that I can be up at six to get G ready to school.  I get to drive him every morning and it makes my day.  

I got G enrolled in his first overnight camp with his BFF and he could not be happier.  Me on the other hand....the week without G is just weird.  All three of us will survive and he could not be more excited.  

Hugs!

Jennifer Nichole

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