Jeff’s Story

Site created on September 12, 2018

Hello  friends and family.  My name is Kaley, Jeff's daughter, who will be updating his caring bridge. I would like to start out by thanking you all for the love and support you have showered us with this past month. We truly do appreciate it. Jeff's journey began June 15th. It started out as a great day- a trip to the mountains with a good friend, lunch, and laughter. The good day quickly came to a halt when Jeff could not properly urinate. After many hours of frustration, he could not take the pressure in his bladder anymore. I took him to the emergency room where they put a foley catheter in. It was instant relief for him, but we were not told what the issue was. A week went by and he was finally able to get an appointment with an urologist. After multiple invasive tests, the urologist's diagnosis was an enlarged prostate. It did not sound concerning at the time, but it did require an outpatient surgery. On August 8th, Jeff was scheduled to have laser surgery on his prostate. With a laser, they made a channel in his prostate to allow urine to flow freely through his ureters into the bladder. The surgeon took a biopsy of what they thought was his prostate at the time, and sent it out to pathology. The procedure went fine, but because of excessive bleeding, he had to stay the night. The doctor took his catheter out the next morning, and allowed him to go home. From Thursday-Sunday, Jeff self catheterized himself roughly 30 times. He had blood clots in his bladder that were once again preventing him from urinating properly. Sunday morning, my two uncles- Greg and Ed, took Jeff to the emergency room.  Since Jeff was not able to empty his bladder, all of his urine was backing up into his kidneys, causing acute kidney failure. It was urgent that his kidneys get relief before causing severe damage. An on-call surgeon got to St. Anthony Hospital in decent time, where he took Jeff to surgery and removed the blood clots in his bladder. During the procedure, he found a tumor that was pushing on his prostate and bladder. This was the first we had heard anything about a tumor, and we began to worry. That night, nephrostomy tubes were placed in both kidneys. A nephrostomy tube is a catheter that is put through the skin directly to the kidneys to drain urine. This ultimately saved his kidneys and we were so thankful it was caught early. Jeff was in the hospital from Sunday, August 12th- 18th.  During that time,  countless procedures were done and many painful days due to bladder spasms (what is thought to be from the tumor pushing on his bladder- causing extreme pain).  The pain was finally minimized and we could go home, only to find out terrible news.  On August 23rd, the pathology result came back:  Spindle Cell Sarcoma of the bladder and prostate.... cancer. Here we go from  starting out as an outpatient procedure, to cancer.  We met with an oncologist who specializes in sarcoma at Anschutz Medical Campus UC Health in Aurora. This hospital is 1 of 40 in the United States that has a sarcoma team. Since this cancer is so rare, we are very lucky that we live only 30 mins from this team. Thank you all again for the continuous support. 

Newest Update

Journal entry by Kaley Strohman

From my last post Jeff was dealing with a fistula that was anticipated to heal on its own. A couple weeks after my post, he got another one on his abdomen. To my knowledge, a fistula is an abnormal connection between two things in the body that should not be connected. In Jeff's case, the second fistula was the connection of his small intestine to his rectum. Our hopes of the fistulas healing on their own were diminished last Thursday when his surgeon had to operate. At the time, they did not know where the issue was, so it was an exploratory operation. After 7.5 hours and 33 staples later, the surgery resulted in a partial removal of his rectum and an ileostomy bag. Thankfully, the ileostomy is temporary and will be reversed in a few months, but that will be another surgery he will have to endure down the road. Since this is Jeff's third time being cut in the same spot, the incision is not healing how it is supposed to and leaking in two areas. They will keep him in the hospital for at least another day to monitor it. He is being a good sport about it all and will continue to take it day-by-day. 
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