As I mentioned, in my last message, Jedi had his routine scans to check for recurrence of cancer, he had some bloodwork, and we met with the doctor. We are overjoyed to share with you that his CT scans were clear of cancer, the bloodwork they did was essentially normal, and at this point, we don’t need to do any more scans in the future, unless there is a recurrence of symptoms. This was a shock to us, as we thought we had at least one more set of CT scans, but we are so happy that he’s doing well enough to stop the scans. Part of the reason I didn’t make a post sooner, is because the day after his scans, Jedi started having pain in his left thigh. He had played three basketball games, so we thought he had just strained a muscle or something like that.  We had him use ice and rest but, as the weekend went on, the pain increased to the point where he couldn’t put any pressure on his leg. By Tuesday we were in to see pediatric orthopedics, where an x-ray showed no obvious break in his femur.  With the increased pain, the weird presentation, and his history, they decided they needed to dig a little further. The CT scans he had don’t go down to the thigh area, so we needed further scanning to look at that area. 

Jedi had more blood work (to check for infection) which was fine, and they scheduled an MRI for the next day. The MRI showed that he had the beginnings of a stress fracture in his femur. Poor guy! Although this finding is not great, we are incredibly thankful that the scan did not show cancer!🙏🏻 The doctor said non-weight bearing for three weeks and then partial weight-bearing for three more weeks after. We will also have a consult with pediatric endocrinology to evaluate his bone health further. Pain control has been a challenge, but we feel like that has gotten better over the weeks.

 As any active 13-year old kid would be, Jedi is bummed that he couldn’t participate in his basketball party or in PE at school (he loves pickle ball). We’ve also had to rework plans for little trips and family activities…plans change this we know😬 Perspective is a great attitude adjuster in these situations. Although the changes can at first seem disappointing, when you hold them up to the struggles of the past few years, they hold very little weight🙏🏻🥰

In other news, we would like to share something awesome with you! Jedi was asked to co-emcee the Miracle Gala (an evening  dinner event for Children’s Miracle Network) with a local news anchor. He is so excited for this opportunity, and we are thankful that he can continue to give back to CMN! 

Thank you all again for your continued support of Jedi and our family. Please continue to pray with us for healing of Jedi’s leg and for wisdom for his endocrinology doctor during that evaluation process.🙏🏻💙

“May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit”~Romans 15:13

Sending love from our family to yours,

The Schallers🥰