Journal entry by Ashley Goforth —
Jax is recovering well after his open heart surgery! He made big strides yesterday. Big steps included:
- eating solid food (and loving every minute of it it! He’s such a good eater, ESPECIALLY for a heart baby!)
- standing
- walking (not too sure about it, afraid he was going to fall, and resorted to just wanting to stand and hug my neck)
- lost some of the IV catheters in his body
- weaning him off of some medications
- his echo showed he has normal heart function now!
- has regained his awesome personality now that he feels better and was popping bubbles, laughing, and actually talking to the nurses and therapists (which he usually doesn’t do in the hospital)! He regained his Maui hook today and told everyone “It’s Maui time!!!!” 🤣
We have just a few more goals to meet to make it to the progressive floor (last step before coming home). His siblings are happy about that because they cannot visit him in the ICU but can on the progressive floor. They miss their little brother!!