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May 19-25

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Mom has been making steady progress over the last weeks. We admire her dedication and determination 💛 Her positive outlook and tenacity. 


We now have a schedule for outpatient therapy. The appropriate medical equipment has been installed. A caregiver has been coming regularly and she is a fantastic fit for mom (and our family). 


Mom will be receiving a new brace for her right leg only. (Right leg is weaker.) The left leg brace will be removed. New leg brace will be more flexible. Current braces are firm. 


Mom has moved up to a 4-wheel walker with lock. This type of walker allows for more mobility and less dependency for balance. 


Strength/Muscle Weakness and Exhaustion are still very much present. Her voice has not returned, it has remained hoarse. 


Looking forward to an appointment with an autoimmune disorder specialist, with a focus on GBS and CIDP 🙌🏻


Focusing attention on Dad now . . . Paramedics took him to the ER Saturday, May 28th. Following testing, it was confirmed he has an irregular heart rhythm (A-fib). He was put on medicine, will require follow-up testing and an outpatient procedure (Ablation). He has been released and we will be scheduling with his Cardiologist following the holiday. 


(We do not know if he has always had an irregular heart rhythm or if at some point it was caused by something. The doctors also noted he should be tested for sleep apnea. “It is estimated that half of the patients with AFib also have sleep apnea. And patients with sleep apnea have four times the risk of developing AFib. Over time, untreated sleep apnea can lead to the onset of risk factors such as hypertension and diabetes that predispose a person to A-fib…”)


Good Website Resource for A-fib: 


Atrial fibrillation - Symptoms and causes - Mayo Clinic


BIG THANK YOU to Kendra, Tom and their entire family for quite literally running over to our parents house, regularly 😘 


BIG THANK YOU to Uncle Jim & Auntie Virginia for being with our Mom & Dad on Saturday, until I was able to get there ❤️ 


BIG THANK YOU to all the family members and family friends who have been reaching out and continuing to pray ✝️💟 Thank you is simply not enough. 


Mom and Dad like to keep an exciting life, keep us on our toes, but Keaton and I have expressed that they need to calm their wild lifestyle down for a bit . . . please?!?! 

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