I apologize that it's been a while since we last posted.  Jackson has been very healthy throughout the pandemic and he's gotten back into a pretty regular routine the last few months.  He has therapy 3 days a week and attends his daycare, Child's Way, 3 days a week.  He has been driving his chair like crazy and even had to get all new wheels about a month ago from all the miles he's putting in!

Jackson set a new record of 18 minutes and 33 seconds off of his vent last night!  We're so proud of him!  The biggest change I would say since our last post is that there is definitely something going in his left lung now!  It's not as significant as the right side, but it's movement that wasn't there a couple of months ago.  His surgery was in September 2019 and the Doctor said it would take 12-24 months to potentially see results, so we're excited and hopeful for his lungs to continue to get stronger!  We know the potential of getting him off the vent will be a marathon, not a track meet, but this new development is exciting!