Jacey’s Story

Site created on September 25, 2020

Welcome to Jacey's CaringBridge website. We are using it to keep family and friends updated in one place because so many people have reached out with love and care and this makes it easier to communicate. I know Jacey will appreciate your support and words of hope and encouragement. I know he can't wait to share his story in his own words, again.


For those that are just learning of Jacey's condition, a little back story. Jacey was diagnosed in April of this year with Acute Myeloid Leukemia, a rapidly forming blood cancer. He hadn't been feeling well and was incredibly tired and went to get tested for COVID. Instead, he was diagnosed quickly with AML and admitted immediately for chemotherapy. Between April and August, Jacey completed three rounds of chemotherapy (including an infection after his second round). In total spent about 60 days in the hospital.


In August Jacey was considered to be in 'remission' which means that the cancer was not great enough to be seen via blood and bone marrow tests. Because of Jacey's particular type of AML, it was recommended that he undergo a stem cell transplant (sometimes referred to as a bone marrow transplant) to replace his immune system cells with new, healthy ones since AML can reoccur within a year of going into remission. Although a bone marrow match had been identified, the match was located in Europe and due to COVID was not an option for Jacey. Instead, the transplant team proposed moving forward quickly with cord blood stem cells.


At the end of August Jacey was admitted to Duke Bone Marrow Transplant and underwent another, more intense round of chemotherapy and radiation to not only kill any hidden cancer cells but also eliminate his existing immune system cells to make way for the new cells and prevent his body from fighting the foreign cells. On September 2nd Jacey received two small bags of stem cells through a central line, each taking about 10 minutes for which he was wide awake and able to witness. It was very anti-climatic but so special to witness a lifesaving treatment from a caring donation. (seriously, if you know anyone who is pregnant inform them of the ability to donate umbilical cords).


Jacey did really well up to the transplant, but his energy started to decline (naturally) after transplant due to the effects of radiation. Last week (two weeks post-transplant), he began displaying signs of delirium. He was confused, wasn't answering questions when asked, and when he could respond couldn't clearly identify that he was at the hospital or what year it was. The doctors originally thought it was medication, or maybe a virus (he tested positive for the HHV6 virus, common for stem cell transplant patients), but testing is ongoing since his delirium has persisted for more than a week now (as of September 25th).


Please continue to pray, send good vibes, and positivity his way. I will continue to keep this site up with daily journal entries as best as I can as I know Jacey is not able to communicate as well, or as well as he previously had been.

Newest Update

Journal entry by Crystal Zembal

Wow, so many anniversaries continue to roll in this week.

A Thursday a year ago, April 30, was when I officially got my acute myeloid leukemia diagnosis and immediately started chemo therapy at Duke Hospital in Durham, N.C.


A year later I am … 

• I am down to six pills for four days a week I think, and seven pills for three days.

• I was bound and determined to walk the dogs for at least two miles, and reached 2.2 miles on two days or maybe three in the last 10 days. I am tired afterwards but it’s a good milestone for me.

• The puppies have both lost weight, which the vet said is impressive during the Covid pandemic, so the walks and playing ball in the back yard are paying off for all of us.

• There have been a few days where I’ve struggled, maybe due to some remnants of host vs. graft disease. It resulted in a rash, which seems to be going OK now, and an upset stomach. Speaking of the rash…

• I might be able to get the Covid vaccine once the rash and everything is good, so perhaps mid/late-May or sometime in June.

I’ve seen some incredible things the last two weeks. I’m sure my friend Amanda is too busy to read something like this, but she had a miracle baby April 17, Emma.

The legend of Norm could have a happy ending. Norm was a young, energetic, athletic chocolate pit bull, who arrived at Saving Grace NC. He immediately scaled the metal fence to go after chickens, and it didn’t end well for the chickens.

That put Norm in a precarious position of he needed some exercise and ability to go to the bathroom during the day, so he was getting leash walked. My friend Nathan Mullins took it upon himself to walk Norm during his free time, and that graduated to having Norm to his house for fostering, to being fostered at least four nights a week while he went on weekend foster. I had seen this happen before with a athletic pit bull mix named Mazie, who needed a foster from a SG volunteer for 10 months before finding a home. The negative about being fostered is that there aren’t going to get someone to come through the SG gates and make that great first impression, which does sometimes happen.

What makes the situation more remarkable is that the Mullins’ have four dogs, two of which are “littles” so it had to be tricky at times at home. I think they know this but Nathan and his wife Katherine will always hold a special place in my heart. I volunteered with Katherine every Monday night for maybe a year or so, not the full shift, but when I could get there because she was my friend and needed help. When her dog family grew to four dogs, she elected to change her volunteering schedule.

I was a little burned out myself because I was doing one or two other shifts, but surprisingly after things became bumpy, Nathan stepped in to take over the Monday shift. So because of our friendship, I volunteered with him for a full year. Incidentally, I stopped by Saving Grace this past Sunday to say hello to some friends I haven’t seen in over a year because I needed a pick me up.

There will also be some players I covered in high school who will hear their names drafted by the NFL this week. 

It’s hard to see all the good prep football players in the state of North Carolina, but I’ve seen my fair share. Cornerback Caleb Farley (Virginia Tech), offensive lineman Landon Dickerson (Alabama), outside linebacker Chazz Surratt (UNC), wide receiver Sage Surratt (Wake Forest), wide receiver Dyami Brown (North Carolina), running back Javonte Williams (North Carolina), quarterback Jamie Newman (Wake Forest), Hamsah Nasirildeen (Florida State), Mark Gilbert (Duke) and defensive tackle Alim McNeill (NC State) could all hear their names called, who I watched in high school. I still remember being in a cold drizzle filming the Surratt brothers vs. a young Farley on a Monday night because game was postponed due to the weather. Farley and Chazz Surratt both played quarterback in high school.

I also have seen some sadness this past few weeks.

The daughter of my mom’s cousin passed away at age 66 about 10-14 days ago. I knew her, and her two children, but wasn’t close because of geographic differences. I was able to catch up with Jeremy, her son, over Facebook and maybe I can rekindle more family relationships in the future.

My co-worker Lou Somogyi, who covered Notre Dame for Blue & Gold Illustrated,  wrote a story during a Saturday morning, went to play tennis and then suffered a heart attack at age 58. 

The one time I got to meet Lou in person was also the first time I’ve always been to Notre Dame, even though I grew up two hours from South Bend, Ind. Lou gave us what I dubbed our “unofficial visit” which recruiting fans would understand. He knows Notre Dame inside-out and is an encyclopedia of Fighting Irish knowledge. He’ll be tremendously missed and this one will sting for me for a while.

Then a basketball player named Terrence Clarke died this past Saturday in a car crash in the Los Angeles area. Clarke is from Boston, attended Kentucky where his season was limited due to injury and then declared for the NBA Draft and signed with LeBron James’ agent, Rich Paul, of Klutch Sports. He came out to Los Angeles to train, and in his second day there, he was reportedly going at a high speed, ran a red light, avoided a car and ran into a pole. He also didn’t have his seat belt on correctly.

I first saw Clarke in August before the start of his freshman season. It was obvious then he was going to be a top 1 0 recruit in the country, and he ended up challenging for the No. 1 spot. He later ended up transferring to Brewster Academy in Wolfeboro, N.H., and they came through Raleigh for the John Wall Holiday Invitational. I also saw Clarke with his Expressions Elite traveling team and I believe at the NBA Players Association Camp. I wasn’t close to Clarke, but probably saw him play around 8-10 times on the prep level, and he was likely a late first-round pick or maybe an early second round pick.

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