Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Sunday, September 20th Iris was at her Nana and Pappy's when I (her mother) noticed a rash on her legs. Having a blood disorder myself, I recognized the rash immediately and mentioned it to my mom, Iris' Nana. She commented her color seemed off that day and I agreed. I called her pediatrician the next day and told them everything, assuming they would want to see her and do blood work to see what was going on.
Wednesday, September 23rd, Iris had a doctor appointment with her pediatrician to have her rash checked out and get blood work done. When the blood results came back Wednesday afternoon, I was told to pack up things for a few days and head to University of MD in Baltimore with Iris because her platelets and hemoglobin were both dangerously low. When we arrived, more blood work was done and late Wednesday night I was told we were being admitted and to expect to stay atleast a week.
Thursday, September 24th we were told that though her white blood cell count was good, 80% of her white blood cells had leukemia in them. One of the worst things we could ever imagine, our sweet girl was diagnosed with Leukemia. Thursday and Friday were filled with a lot of tests, meetings with doctors, and questions waiting for answers.
She received her first treatment on Friday night and by Saturday morning, we were told that her official diagnosis was CSN1 Acute Lymphoblastic Leukemia. This means that her spinal fluid was clear of leukemia cells on both day of diagnosis (Thursday) and day 1 of treatment (Friday). Moving forward, she will receive treatments twice a week, for the first month, hopefully in an outpatient procedure. As we learn more, we will share with you here. Please keep her in your prayers, and send healing thoughts her way! Thank you all!!
Iris had another awesome doctor appointment and chemo treatment today! Also, her blood counts were good enough that she doesn’t have to go back for a check up during the week of Thanksgiving!! She does have to get a COVID test on Black Friday, but she can get it done in town.
Her next appointment is Monday, November 30th when she will begin Interim Maintenance 1. She will also get her follow-up bone marrow biopsy done that day.