This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 19-25

This Week

Ila hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

(cross-posted at https://www.facebook.com/ilascullionhellgren/)

This will be our last CaringBridge post for a while; please visit Ila's facebook page above to continue to follow.
_____________

We are still looking for a hero to being Ila's living donor. We have had a few people evaluated with no matches, and unfortunately, Ila willl need a liver in the next few months. We can't be certain what the weight/height/BMI threshhold is, but Jadon is ~155 lbs, and we know he's too big, so it’s likely her donor will need to be smaller than that.

If you meet the following criteria, you can fill out this form to be considered: https://www.uwhealth.org/t…/living-liver-donor-inquiry/52502

-0 blood type (positive or negative)
-18-55 years old
-In good health
-Can be in Madison for a significant amount of time for evaluation and surgery & can take significant time off of work for surgery (anywhere from 8-16 weeks)

We do ask that you only fill out the form if you are have given serious consideration to the surgery and risks and sacrifices involved. Only one person can be evaluated at a time, and it can take up to a month for a single person to complete the process. During that time, nobody else can be evaluated, which is precious time for Ila who has limited time with her native liver.

Here are some FAQs that might be on your mind: https://www.uwhealth.org/…/live-liver-donation-freque…/12753

Important: If you have filled out the form, you should have received an email response from someone at uwhealth.org and, after reviewing the materials in the email, you need to call the number in the email as a next step. If you have had any problems with communication/responses, please let Dana or Jadon know.
___________
Looking for other ways to help or contribute? Here are our suggestions:

-Register to become an organ donor. www.donatelife.net. Over the holidays, share your wishes with your family and then ask them about theirs. Share Ila's story; we know she has inspired us in ways we never imagined!
-Show your support for COTA in honor of Ila by making a donation here: https://cota.org/campaigns/COTAforIla
-Donate to American Family Children's Hospital: https://www.uwhealthkids.org/get-in…/in-kind-donations/35459
-Donate to Ronald McDonald House (in Madison or in your area!) https://www.rmhcmadison.org/

Thank you for continuing to follow Ila’s journey. Warm wishes for a peaceful holiday season to you and yours.

Read the latest Journal Entry

1 Comment

SVG_Icons_Back_To_Top
Top