Ian’s Story

Site created on September 7, 2022

Dearest friends and family of Ian,

You may or may not know that Ian has been diagnosed with colorectal cancer.  After two years of living in Vermont he moved to Raleigh, North Carolina to be closer to his father and stepmother and work on new projects.  Soon after securing an exciting management position with a local food group and finding a simple room in an apartment and he fell quite ill.  While it took some time to get a full diagnosis and develop a treatment plan, he has landed in the care of a great team at the University of North Carolina Treatment will last almost a year. Phase one involved a combination of radiation and chemotherapy and required going in for treatment daily, five days a week for six weeks.  With the incredible support of Doug and Hope his brother Paul he has successfully completed Phase One and has just begun phase two, more on that in future posts.

Ian will share information about how treatment is going here to keep everyone up to date, as it can be exhausting to keep everyone individually and he'd rather connect with each of you in more meaningful ways than giving medical updates!

Ian and the immediate family do need help right now, here are some of the ways:


1. Financially: At this point, Ian is unable to work and has applied for all government programs to help cover costs but those programs could take up to six months to get started. Can you help Ian cover basic living expenses this year? He is living very cheaply (renting a room in a house) and thinks he could get by with $17,500 to cover all living expenses. If you can help at all (even a small donation will help!), please go to this Go Fund Me site https://www.gofundme.com/f/ian-marvy-with-living-expenses (https://www.gofundme.com/f/ian-marvy-with-living-expenses%C2%A0?fbclid=IwAR3R_hVvlJb_Mhd6vj78ZUNjQ7h_WtBn5MoAPyc9qPc9_pY98IQHzlbRPM0) . If Venmo or PayPal are better options for you here you can support Ian through Venmo @ian-marvy and his Paypal is Paypal.Me/IanMarvy. If you can't donate, do you know others who can? If yes, please share the link.

2. Creating a healing home and nourishing hearth. As we all know an important part of life for Ian has been growing plants and creating food for himself and others. In addition to the gofund.me which is to cover living expenses. He has set up a small wish list on Amazon.Com. Though he hates the company he needs the services offered to support his health and healing. Please check out the link and see if you want to send something along to help him on this Journey. You can support by visiting Ian's list here. https://www.amazon.com/hz/wishlist/ls/13U2RUFA1LSIO?ref_=wl_share (https://www.amazon.com/hz/wishlist/ls/13U2RUFA1LSIO?ref_=wl_share).

3. Healing Connections: After the impact of COVID on all our lives it seems many of us need to connect. And Ian is a people person and longing to connect and reconnect with you! If you live nearby (or can visit), he'd love to go for a walk or to play a game of Bocce (as he writes "True fact Hampshire college had the Guglielmo Marconi memorial bocce ball court which was right outside the dining hall".). If you don't live in the area and can't visit, maybe you can go for a virtual walk and talk with him. He would love it if you reached out: brooklynfarmer@gmail.com or 718-288-3455.

4. Plant Power: Ian would love some help figuring out how to grow houseplants.  He writes "I know a great deal about the foods that we grow or forage for sustenance, I don't know the first thing about keeping house plants (save for, shockingly I know, the wandering jew which I love). Plants will add beauty to my space, filter out the toxins in my space and generate healing oxygen for me and my housemates to breathe. What should I grow? How do I care for it?"

5. Send him a flower: Not literally but shoot a photo of something beautiful, post it here or on his Facebook Page ( https://www.facebook.com/ian.marvy/ ) and if you have the words share why its an image that is important to you. You could also draw, paint or creating your way an image or object of art and either snap a photo or send it along. Beauty is a powerful healing force and his room walls are still a little bare. The best address to use is Ian's father's address: 604 East Davie Street, Raleigh, NC 27601.

Thank you for any and all support you can give Ian, he can use a lot of love right now!

Newest Update

Journal entry by Ian Marvy

Morning Friends and Family,

Hoping that the weekend was fun and fulfilling yet restful and relaxing and that this the first week of Spring might begin a season of renewal and growth for each and all.

I have to start by apologizing to you all. It has been many months since I last posted here. I had intended to write a final post on the anniversary of my being cancer free and then to shut the site down. Unfortunately, my body has had other plans.

In late January I went in for a CT-Scan in preparation for my first annual meeting with Dr. Hanah Sanoff.  The CT Scan was generally good but there were a few images that concerned her. Since then I have had two PT-CT scans and a cystoscopy (bladder scoping).

The scans seem to confirm what Dr. Sanoff was concerned about. I have two small (2cm) areas in the back of my bladder that appear to be cancerous. This area was in contact with my previous colorectal tumor and was always an area of concern.

There were two other areas of concern these include the proximal ascending colon and mid transverse colon. The radiologists who prepared the report are recommending a colonoscopy to further investigate.

So far my CEA levels are well within the normal range. A carcinoembryonic antigen (CEA) test measures a specific blood protein. But some types of cancer can increase this protein. Healthcare providers may use a CEA test for a variety of cancers including both colorectal and bladder cancer. It can also be used to guide cancer treatment and to see if treatment is working. If the levels were higher it would generally indicate a more rapid growth potential. So I am in a good range and have a good base line from which to track

Thankfully, my bones, my other organs and critically important my lymphatic system show no abnormalities at all which suggest this is a local contagion associated with my previous tumor rather than something that is more systemic and metastasis. Thus the Docs believe that this is adenocarcinoma rather than bladder cancer. This is very good news on multiple fronts including the fact that bladder cancer is a much harder fight than colorectal cancer.

My scans went before UNCH’s "Tumor Board" the past Monday the 11th. There was total agreement that the two growths are cancerous. They are currently recommending a surgical option but it could possibly be a very radical surgery. I’m looking forward to speaking Dr. Stitzenberg, who is the head of Surgical Oncology at UNCH and was the person who removed by tumor in February 2023.

Soooooo what’s next? Tomorrow, Tuesday, March 19th I will have a colonoscopy.  Hopefully With the PET-CT scan, the cystoscopy, and the colonoscopy hopefully they’ll have a good picture of what’s going on and we can come up with a course of treatment that is effective.

I am pissed and sad. But working on my attitude as I know that this is an important part of healing. Should this really be another round of cancer Megan Voorhees (one of my two Big Sis’) has encouraged me to think of this as remnants of the previous cancer and the work is a clean-up job. I like it and have adopted it.

In addition to setting my mind on health and healing I have begun a new round of research into adjuvant (supportive) and alternative treatments as I did before.

In addition to pomegranate, apples, and THC, there is some great research on Frankincense and how it both arrests growth processes and deter reoccurrence. There is also solid research on Cucurmin (turmeric), astragalus, burdock and Dandelion as well as number of other herbal combinations. I've reached back out to Nat Blatter a friend of Megan, and mine who is a ethnopharmacologist who helped me decipher the hard science of these documents and made some recommendations to me last round. We’ll be connecting in the coming days.

I’ll also be reaching out to both an indigenous healer and a herbalist who I love and respect and who were also both involved in my care last round.

Appreciating each and every one of you for your care and concern, for the light and love you share and for the work you do on behalf of people and planet. I am confident that you played a role in my stabilizing me and bringing me to a new state of health and I know that will be true in the days, weeks and months to come.

With your support of you, my friends and family, my broader community of care and concern, the power of natural medicines and the involvement of the great doctors at UNCH this might go as smoothly or even better than my last dance. Let's hope.

Lots of love

Your friend, brother, cousin and nephew and son

i.a.m.

 

p.s. this beautiful image was gifted to me by my life long friend, Aileen Erler. Back home on the south side we would have called this powerful music. I see people dancing, singing, praying and praising. The energy reverberates, it is being drawn in, circling around and pulsing outward. It is an ecstatic concentration of healing energy through and with community and all of creation.

let's do this......

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Ian Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Ian's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top