Today Huxley had a follow-up cardiology visit to check on his pleural effusions that he was hospitalized for last month. 

His lungs are showing a significant improvement from his previous x-ray while he was admitted. His saturations are also back to his baseline - today they were like 95% which is CRAZY being that he was 83% on a good day before his Fontan. Because of that, we can now work on weaning his Lasix. He was on 3 doses a day and we are going to try dropping him down to 2 a day. Our goal is to come off the Lasix completely within the next couple months, and crazy enough he should only need a baby aspirin which he will continue for his entire life. We do have to come back in about a month for an echo, ekg, and x-ray. It sounds like as long as everything is stable at that point that we can go back to our normal every-few-months visits. 

From our point of view- he is doing AWESOME. He is so energetic and feeling so much better. His coloring has been great & we haven’t checked his saturations often - but when we have it’s typically low 90’s, which is wonderful for him. 

That being said, as relieved as we are to be past this third surgery and feel like we are reaching a stable place for him, Huxley will never be “fixed” for life. As much as we stay hopeful & pray that he stays stable - he will forever be watched by cardiology, he will need heart cath’s done periodically as he gets older, and he will also have abdominal x-rays and blood panels done to check for fontan- related issues that come along with living life with a single ventricle. Thankfully, there’s so many advances and the outcomes for these kiddos just keeps gettinggreater.

Also, thank you as always for the continued prayers, those of you stopping us and saying “Hi” and checking on Huxley when you see him. Believe it or not he just loves the attention! ;)