Hugh John’s Story

Site created on December 20, 2022

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Newest Update

Journal entry by Carol Sundet-Meeker

Good evening,

Good news from the onocologist yesterday.  Last week I had 2 CT's one of by neck and one of my chest.  Now I need to say that my insurance would not cover a PET scan or my CT scans, unbelievable.  But we needed to know so we went ahead and had the tests anyways.  

The onocologist said that I am in remission in my tonsils and my lymph nodes in my neck have shunk.  So that is the best news that I have received in 10 months.  He does want to keep an eye on  4 nodes in my lungs.  Now we knew about these in December 2022 but they said they were going to watch them for now and so it continues. Hopefully I get my port removed in the next week. 

Now I have to go to PT for swallowing.  Can I just say this has been a crazy ride?  I have dropped over 50 lbs from cancer, I have a difficult time eating and shallowing and still do not have my taste buds back and a lot of foods taste like moldy cardboard. 

Last November, we found out that I had cancer when I was trying to have the doctors clear me for a hip replacement.  If all goes well, I will be having my hip replaced in January 2024.  I need all my doctors to sign off  60 days prior to surgery.  So my heart, diabetes, ENT, onocologist and interniest doctors all need to sign off.  I am a complex patient!

I have to thank all of you for your prayers and support thru this adventure.  

I want to thank my family and friends for all the support I couldn't have done this without you all!

Love Hugh 


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