Journal entry by Amy Mendus —
Our sweet Henry is HoMe!!! We are beyond relieved and thankful for his surgeon Dr Grabb and all the wonderful nurses and staff on 4w at Children’s Mercy❤️ We have quite the rode ahead of us but knowing he has such incredible love and support from all of you make the load a little more bearable. He is still having trouble with nausea but much improved from the previous couple days. He is back to being ornery and chatty 🥴 . If I’m being honest, spending over 120 straight hours locked in a hospital room together was actually enjoyable in a way. We had some rough moments, some tears, some fears, but way more laughs then I could have imagined. He is genuinely the coolest kid I know, and by far more brave then ever expected. Fred and I haven’t seen him laugh and smile as much as we have the past couple days despite feeling crummy. He is an inspiration to us and we feel beyond blessed right now. We can’t wait to see what the future holds for Henry….he hasn’t known what “normal” feels like for quite some time.
One of the funniest Henry quotes from the weekend….(back story, his wifi wasn’t working on his phone but our’s was)…. “Just look at you over there, sitting on your high horse with your hotspot…”….add some Valium induced slurs 😂🤣