Journal
Wanted to share a note that Hayley has recently been back at Children's Hospital. She has started experiencing some new and previous symptoms including vision impairment, color distortion, lower face numbness and limb numbness with a burning feeling in her arms. In addition to her symptoms, she has a lesion that has enlarged causing many questions for her care team.
We appreciate your prayers and continued support for both Hayley and our family. Thanks to Erika and Katie for swooping in to help with our children this week. Also, thanks for the boost and smile Patty. She loves her first CSU shirt.😍
Hayley has undergone additional scans this week and the good news is there are no new lesions and the enlarged lesion has not grown further since previous scan on Feb 11th. The challenge is trying to figure out the best treatment options at this time and how to help with the exacerbated symptoms. She has been discharged and will be home for the weekend with frustration around finding a "fix" for her symptoms. She will be back at Children's (outpatient) next week for an assessment and appointment.
Warmest blessings and we feel the presence of your prayers and support. Thank you all 🙏
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