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May 12-18

This Week

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First of all, the best news we have gotten is that we’re going home tomorrow on Terry’s Birthday!!! Harrison is doing great - he’s eating like a champ, and that is the biggest sign doctor’s want to see. He’s absolutely crushing it already! We could not be more excited to get home and get settled as a family of four - Blue can’t wait to meet her brother! 

Today we met with an incredible pediatric neurologist who reviewed the MRI Harrison had. Harrison was diagnosed with Moderate Hypoxic (lack of oxygen) Ischemic (restricting blood flow) Encephalopathy (affecting the brain) commonly known as HIE. We learned the area of his brain that was affected was mainly motor functioning. We learned this has a wide range of what it can look like, and will take time to see what interventions will be beneficial for him. We do not know how or why this specifically happened, it could have been a number of different reasons. We have been prepared extremely well with resources, and although there is a lot of unknown, we have a lot of confidence in God’s plan for our son’s life. What we are focusing on is attending his follow-up appointments, and taking this day to day. We are still very much so processing this, and are asking others to let us come to you with talking about it. With all the unknown, most of your questions will have the answer “I don’t know”, “It depends”, or “time will tell”, we will keep people updated as we learn more. The doctor told us the first 4 months he will be doing a lot of what he is currently doing - eating, pooping, sleeping, and getting settled into his life at home. We will start to follow his development or motor skills and follow recommendations of his doctors and providers. We have found a helpful website that we encourage those who want to learn more to visit as we are very newly learning ourselves. We will continue to update this page as his appointments begin, first one isn’t for at least a month. We can’t wait to get home and start our new normal. God has been part of this journey every step of the way, and Terry and I are ready to be the absolute best support system for him, because we have the best support system in you. Harrison has an incredible army behind him, and we will all be by his side every step of the way. Thank you for reaching out and checking in with us, we see and feel your support and it means the world to us! We appreciate you letting us come to you with talking about it all, as you can imagine it is a lot to take in. Again, we encourage you to check out this website to learn more if you have questions, we are learning and navigating it too so we just don’t know much yet. We are #HarrisonStrong and will do anything we can for our incredible son who is truly our miracle baby. He has overcome so much in his short 7 days of life. We are in complete awe of him and can’t wait to be his #1 fans forever! 💚💚💚


Thank you for all the love and continued thoughts, prayers, positive vibes sent as we begin our life as a family outside of the NICU. Harrison is so lucky to have you all and so are we! 

Love, the Hills 


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