Haleigh’s Story

Site created on December 28, 2016

Haleigh has been diagnosed with Acute Lymphoblastic Leukemia...for the 2nd time. This is her story...she is 24 years old...she was her nephews nanny. She has 2 older brothers and a sister-in-law...grandparents...her dad and stepmom...and lots of people who love her. And me...her mom...unfortunately I am living in Illinois...and she is living in Washington State. This is our second journey...we are not newbies...she knows what we're getting into...the biggest difference this time will be the distance between us and a bone marrow transplant after chemotherapy. Welcome to our world...as once again life stops...and she finds a way to beat cancer!!
Update...Haleigh beat ALL the 2nd time...she received her Bone Marrow Transplant at UW Hospital but never left. She contracted Graft vs Host Disease from her unrelated donor cells. She succumbed to Legionella and passed away on August 25, 2017. This her story as she was admitted to UW...received her pre-treatment and BMT and after. And how her family and friends have been living without her.

Newest Update

Journal entry by KJ Beams

If you are reading this because you have just been diagnosed or are contemplating decisions about your treatment? My advice...after 2 years of reflection and grieving the loss of my daughter is...
#1. There are many choices to make about your treatment.
     Traditional...clinical trial...chemo...radiation...T-cell...bone marrow transplant after chemo?
#2. Research all your options...if you can’t do it...ask someone you trust to do it for you.
#3. Gather a team...tell your friends & family what you are going through & gather a team of people to help you.
     You will need rides...prescriptions picked up...injections possibly...dinners...self-care...portable electronics...music &/or movies.
     Please ask for help...treatment is exhausting...there are wonderful humans in your life who are good at these things...get their help!
#5. Make decisions based on your personality and your tolerance for each treatment....you are the only one who knows YOU. ❤️
#6. Have friends or family with you in the hospital.          They can bring a blow up mattress or there are cots available for your room. It’s always nice to have help and not overtax the nurses who have multiple patients to take care of. And that way you get help immediately or someone can advocate for you.
#7. Your physicians will give you their best advice based on your type of cancer.
     The reason you have to choose is because there is no 100% guarantee that your treatment will work. 
     Haleigh had ALL twice and went through chemo twice and her leukemia was gone both times. The first time we looked into BMT but decided against it. The second time we chose a bone marrow transplant as a way of keeping her cancer gone. But her match was not compatible...her new bone marrow attacked her organs & we spent 2 months in the hospital while she got progressively worse each day and eventually died. 
     We have a family friend who went through mouth cancer & stopped his radiation before it was considered “finished”...he felt it was too harsh and he’d had enough at that point...he’s still alive.
     Haleigh’s 2nd cousin developed sarcoma while she was pregnant. She waited until after delivery to have her cancer treatment. Her cancer had spread so they tried chemo to shrink the tumor with no results...a clinical trial which worked...her tumor was operable...then amputation of her leg to be sure her cancer would not return...after amputation she unexpectedly developed bone loss in her neck and required another surgery which resulted in internal hemorrhaging and she passed away this year.
     There is no absolute right or wrong choice...there is no guarantee. You can do everything “right” and still not get the result you wanted. So just take the very best care of you! Ask for help...use your network of friends and family...research...speak up and make the best decisions for you!! No regrets!! ❤️❤️❤️ 
Whatever YOU decide...that IS the very BEST decision!! 👏🏼👍🏼














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