Almost 1 year later and Gracie,  continues to thrive.  She is smart, funny, kind, resilient,  strong  and so loving!  It amazes me how she has adapted to life with a long term central line and GJ tube for nutritional support.  She is on TPN 13hrs overnight and 24hr continuous tube feeding.   

Thankfully she was able to have a colostomy takedown this past May and was a trooper through the recovery.  There have been a few hospitalizations for line infection, vomiting and pain but this little girl's spirit and beautiful smile never wavers!  We couldn't be more proud of you Gracie! We love you so much!

❤️ Grandpa and Grandma