Grace’s Story

Site created on May 29, 2018

Our daughter, Grace, is amazing. Her story began in 2017, she was born in January of that year.

 We had difficulty having a child, before her we were pregnant once before and that pregnancy ended in a miscarriage. We saw fertility specialists and two and a half years after that, Grace came along.

 She is now 15 months old, she’s been the perfect baby and has the most contagious laugh. Unfortunately, we were hit with the most heartbreaking news just 2 weeks ago. Grace was diagnosed with a very rare form of pediatric brain cancer called an ETMR. Survival rates are not high and only 300 or so cases have been on record, also we have begun a clinical trial to give her the best opportunity for survival. We are willing to do everything we can to help cure our darling little girl. We ask that you find it in your heart to help us as we face the coming financial obstacles, so that we can save our daughter’s life.

 It will take support of all kinds: breakthrough science, the best doctors we can find, prayer, and financial support.

Newest Update

Our Amazing Grace

Journal entry by Sarah Mullis —

The train has hit and our world has stopped turning.

No words can describe the pain and heartbreak we feel right now. 

Gracie took her last breath in her daddy’s arms as we sang to her and told her how much we love her.

She didn’t lose a battle, so please don’t say that. The fight was never fair, but she was strong until the end. She will always be our #AmazingGrace


We will be celebrating Grace’s life on Saturday, March 16th at 2pm at First Baptist Church of Indian Trail. Visitation will follow for those who would like to attend.

Again, thank you for all the sweet words of encouragement and love.

 

To honor Grace’s memory, in lieu of flowers we are asking for donations to help further Dr. Hanson’s ETMR research. He is committed to establishing better protocols for these children and is passionate about helping children like Grace. 

http://www.tacklekidscancer.org- “Donate Now” button in the top corner, and indicate it is in Grace’s memory 

 

 

 

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