Apparently the same medication comes in a monthly injection! So on Friday we switched to that. She should not need another injection for at least 3 weeks. It is an immune suppressant so please pray that Noelle stays safe and healthy. She will be starting a Montessori preschool in the am next week as well as doing Classical Conversations. She is very excited.

Her port removal on Thursday went well and she has been doing really well at home. It’s hard to make a four year old rest. She fell asleep right after dinner today. Prayers that we learn to work in some quiet time for her in the afternoon.

Today was her last day of chemo! It’s surreal. Outside of the CMV/HLH stuff we are on the road to survivorship! They will monitor her monthly (check ups and bloodwork) for 6 months, then we move to every 3 months and so on. 

We are reading Psalm 27 as a family,

Verse 3 says, 

“Though an army encamp against me, my heart shall not fear; though war arise against me, yet I will be confident”

I told the kids at dinner, this feels like next level trust! It is only logical and normal to feel fear against an ARMY! But the psalmist’s confidence in who G-d is… the certainty there.  (But still very human if you keep reading!) my point is, there were a lot of times during the last two years I felt afraid, there is a lot of unknowns we can be afraid of still…. But regardless of what encamps against us, we can place our confidence in the One who made us and gave His son for us.

My heart is very grateful to Him.

I can’t begin to thank all of you who read these rambling updates. And pray; that have sent money or encouragement boxes, or cards! You can’t know how much each of you have had an impact on our family during the last two + years. Thank you really doesn’t cover it well enough. But thank you.

He is steadfast in His love for us! 

Love,

Britt