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May 19-25

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Just a quick update to share the good news that the team doesn't think there are signs of relapse.

After an unusually long wait that made us think the worst (“Are they thinking about how to tell us?”; “Are they reviewing it with the whole team to come up with a plan”) we finally got the reading that things remained similar to two months ago and the spinal fluid is clear. The two spots that require continuous monitoring are likely post-radiation changes. One shrunk in size while the other is a bit bigger. 

News on the cerebral fluid and if the shunt is working as expected will need to wait for a follow up with the neurosurgeon in two weeks.

Thanks for all your messages. More news to come soon.

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