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Apr 28-May 04

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It's Christmas Break weekend and it has been a while sense I've written an update, I guess it's time.
 
School has been going well. Gavyn is still progressing on his spelling words and starting to read beginner books. Gavyn's expressive language is still something that is being worked on. Along with his right side strengthening. This fall we had put Gavyn in a stretching cast which he would wear a normal cast as if he had broken his ankle and replace it weekly while stretching his ankle each time. It actually helped loosen his back leg muscles but the weight of the cast made his foot point more outwards. Gavyn liked picking out new colors for his cast each week, We even got to do a combo color of pink and green, He was able to get around school pretty well wearing it also.
We have been encouraging Gavyn to use his right arm as much as possible to keep up the strength. When he remembers to use it on his own he is pretty proud about it. He'll be holding something and say LOOK MOM! We did have a fall back in his therapy when Gavyn fell on his wrist and fractured it. Not much was done after it happened. We were told to keep his hand brace on and let it heal.
Our other issue lately has been dealing with Gavyn's sinuses. He has had a runny nose off and on for probably over the past 2 years. There will be maybe a week or so break in between. Gavyn was getting these horrible horrible headaches that would put him down and he would cry from the pain. It was always in the same spot that the pain was coming from and I was worried it had to due with a result from his surgery... He's had scans of his head and each one seem to show sinus issues. He was prescribed an antihistamine to take daily and that seem to keep the headaches down to once a month. He has been off an on antibiotics also to clear things up but the snot still came and bad breath followed. We ended up taking Gavyn to an ENT 3 weeks ago. Gavyn was clogged up and the Dr was surprise he could breath with his mouth closed. He also noticed Gavyn had the start of an ear infection. We were already on antibotics so he wanted to see if it would help Gavyn and come back in a week for a CT of his sinuses. A week went by and Gavyn was doing slightly better CT showed better then what the Dr was expecting (not sure totally what that ment). He checked his ears, ear infection in full swing, and he said call back in a week and tell me how he's doing. Now it was the past Friday. I call back Gavyn's snotty nose is back with it draining down the back of his throat. He's prescribed another antibiotic...... It's slightly frustrating when I feel that he's just not getting it... I don't wish for Gavyn to have any type of nasal surgery but come on another antibiotic! A new Dr. means another long drawn out diagnosis and resolution. I understand it but it gets old when it comes to the health of your child. When this antibiotic is done we will have to wait and see what happens next.

We have been trying to keep ourselves warm this winter, we were lucky last year. It's snow boot season for Gavyn which has always been difficult. This year I found that Keeping Pace has a pair of boots. They are made for someone who wears braces so Gavyns feet slipped right in nicely. He isn't too keen on wearing them so we haven't had a full test in the snow. We are headed to Minot tomorrow for Gavyn's 9th birthday and Christmas Eve.

I hope everyone has a safe Christmas and stays warm.

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