Fred’s Story

Site created on February 5, 2022

Dear Friends,

If you know our family, then you know that life seems to have a way of keeping us on our toes. The news we are sharing with you today continues us on that trend. 

Fred has been wrestling with a health issue that we now need to tell you about. A few years ago, during a routine check-up, his primary physician heard a heart murmur. That led to a wide array of tests that led to a diagnosis of Hypertrophic Obstructive Cardiomyopathy (HOCM). It is a congenital heart defect – he was born with it. At the time, he didn’t think he was showing any significant symptoms, mostly because he has lived all his life with mild symptoms. 

But in the past 18 months, those symptoms have become more pronounced and it has made his quality of life more challenging. 

We are grateful that we were able to travel to Tufts University to see the primary physician working on this condition in their Hypertrophic Cardiomyopathy (HCM) Center and learn much more about this heart disease. Fred's version is all about the mechanics of the heart. Basically, there is an excessive thickening of the heart muscle—referred to as “hypertrophy”—which has occurred for him in the septum (the muscular wall that separates the left and right lower chambers of the heart). And naturally, because we never do boring, he has a more complicated scenario based on the anatomy of his heart. So he has an uncommon feature in an uncommon (not rare) heart condition. 

We share all of this because he is scheduled to repair his heart at The Mayo Clinic in Minnesota. We need to go the week prior in order for him to undergo a wide range of cardiac tests. So we will be out of town beginning March 13, he is scheduled for open-heart surgery on March 21, and we are hoping to return home on March 28 so he can begin his recovery at home. 

We feel confident that he is in the right hands and are hopeful for a good outcome that will lead to a better quality of life. That said, this is not an easy time for our family. There is of course fear and anxiety around surgery of this magnitude. And so we ask that you hold us and Fred in your thoughts and your prayers. If you would like to add Fred to your Mi Shebeirach lists... his Hebrew name is Tuvia Levi ben Yosef Tzvi HaKohen u'Batyah and if that is too much of a mouthful, you can simply add his English name. 

I will be sharing updates on Fred's surgery and healing on this site. You are welcome to subscribe to those updates and I will also post on social media as well. We know that there is much love that surrounds us from near and far. And we are grateful that we do not have to walk this journey alone. As you lift us up and accompany us on this journey,  we do respectfully ask that you abstain from sharing any "medical advice." Fred will be in the very best hands and it is the counsel of the doctors and nurses that we will follow. And please know that if you don't hear from us for a day or two, or even more, it is not cause for alarm. Some days there won't be much new to report, some days we will be too focused on Fred's recovery or we will simply be grabbing a bit of rest and family time to keep us going on this journey. But rest assured, we will keep you in the loop with as much regularity as we can.

We have set up a Meal Train that you can get from the "Ways to Help" button above. (https://mealtrain.com/2v8338.) We are grateful for the help that so many have already offered to us! It is currently set up for two weeks. If we need to extend it, we will. And we promise to ask for any further help that we are in need of. 


Finally, I'll add a personal note and prayer for the man who is my beloved husband of 27 years, my best friend of over 30 years, and a precious, deeply adored father to our three daughters Yael, Leora, and Noa.

We are scared, God. We feel vulnerable. We do not like feeling helpless.

We are worried, so before his surgery, we pray:

Please watch over him, God, in the operating room. Stay beside him. Never leave him.

Strengthen his will to live. Enlighten his doctors and nurses with the skill, wisdom, and insight to mend and cure him properly. Let this procedure go smoothly in their gifted hands, without complication.

Dear God watch over us, his loved ones, who will sit waiting and worrying about him. Remind us that he is resilient, that he can and will grow stronger with each passing day.

God, with your healing power, protect him from harm, shield him from pain. And when he wakes God, give him the courage and passion to fight for the sacred treasure you have granted him, his life.

(Adapted from Talking to God by Naomi Levy)


Shabbat Shalom friends and family.
With gratitude and love.
Deborah

Publish Journal

Newest Update

Journal entry by Deborah Greene

 

In the end, maybe we must all give up trying to pay back the people in this world who sustain our lives. In the end, maybe it’s wiser to surrender before the miraculous scope of human generosity and to just keep saying thank you, forever and sincerely, for as long as we have voices. – Elizabeth Gilbert

Hello, dear ones. It's been a little while since you've heard from us, so we thought we'd catch you up. Fred is doing well and continues his cardiac rehabilitation twice weekly while increasing his physical activities at home. He is increasing the duration and pace of his walks, and I'm happy to report that among the list of approved activities at home is vacuuming! And while I haven't asked him to get behind the Dyson just yet, I'll remind you all that we are the proud parents of a sweet little lab who sheds like crazy, so his day is coming! He did mow the lawn the other day, using the power propeller mode so he didn't have to do too much in the way of pushing and he is now able to drive himself. All of these are steps toward normalcy that do as much psychologically as they do physically. 

He began to ease into work this past week as well. We know so many of you were happy to see him and we are grateful to you all for allowing him and us the time and space needed for healing these past six weeks. He is moving into work life slowly, listening to his body and not pushing himself too hard or too fast. I must admit that I will miss all of the quiet, quality time that we have shared together. It is good to be reminded that we really enjoy one another's company and find comfort in simply sitting, reading, resting, and being together. We joked that this was our little glimpse at what retirement will look like and it wasn't too shabby!

We are also looking forward to celebrating a major milestone in one week, as our middle daughter Leora, graduates from Colorado State University. We are so grateful that Fred is feeling strong enough to attend and we are thrilled that we will all be together to celebrate from a place of health, healing, and wholeness. And in case you haven't heard, Leora will be moving to New Orleans in August to serve as an Avodah Corps Member working with the Innocence Project New Orleans. She'll be working directly with clients who have been wrongfully convicted of crimes and with their Unjust Punishment Program to support those who have received excessive sentences as a result of draconian sentencing laws in the state of Louisiana. We are incredibly proud of her and can't wait to watch this next chapter unfold! 

And so dear ones, this will be the last entry on the Caring Bridge site. We are moved and grateful that you have accompanied us on this journey. You nourished us with your food, you lifted us with your prayers, you enveloped us in your love and you stood back and gave us room to focus on rest and renewal. This story, our story, will always include you because of that. Some may never know what it is to be a part of a kehilla kedosha, a sacred community. But we do and ours reaches far beyond the Rocky Mountains, it encompasses friends and loved ones from near and far, and we are filled with gratitude.  Oscar Wilde wrote The smallest act of kindness is worth more than the grandest intention. Your acts of the heart are forever etched onto ours. 

Shalom dear ones and thank you! 

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