Hi all,

Time for an update as we prepare for a big surgery. Generally, Frankie is doing well. He has been working hard in his therapies. He did two intensive therapy sessions this summer, one that focused primarily on his communication buttons/iPad. 

He starts Kindergarten in a few weeks and we are very excited about that. 

On Friday, Frankie is having a surgery called a mitrofanoff. I will let you Google it if you’re so inclined. The idea is it will help his bladder and kidneys not have as much pressure in them while also providing a more comfortable and efficient way to catheter him.

It’s something that we have discussed with his doctor for quite a few years but we were hoping to avoid needing to do something as drastic.  Alas, that is what is happening.

He will be inpatient for several days at least and the recovery will take a while too. 

It has been a stressful summer and I’m just hoping this will go well and as easy as possible.