Ford’s Story

Site created on May 30, 2023

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Newest Update

Journal entry by Christine Juhnke

Happy to say that Ford's cranioplasty surgery was done on June 26th. We arrived at the hospital around 8 AM and he went in for a CT scan. That went well. Then moved over to the preop area started prep there. They had him take another shower with the "special" soap. Then they tried to start an IV. That did not go well at all. The first nurse that came into to do it, took a long time to find a vein, and then when he finally tried to insert the IV, he missed the vein and spent about 5 minutes or so "digging around" to try to get the IV started. He did not succeed. Ford was visible shaken and anxious. They then had the anesthesiologist that would be in with Ford for his surgery come in and even he had a difficult time, but did get an IV started. He also told us, and Ford, that he would most likely have to remove that IV and start a new one with ultrasound guided imagery once the had him sedated in surgery.  Surgery was scheduled to start at 11,   but did not start until almost noon.  The surgeon came out around 330 or so and told us that the surgery appears to be successful. They were able to place his skull back in and secured it with some titanium type washers and screws. Ford was in the recovery room and and would be going up to the floor soon. We were called back to the recovery room and met Ford in the hallway and went up to his room with him. He was awake, but very cranky and tired.  We were told he would be like this and the best thing for him would be rest and sleep.  Thankfully, his nurse was one that he had with his last hospital stay, and knew him.  After we got him settled into his room,  we went home for the night. On Tuesday, June 27th, I went back to the hospital in the morning, and Ford was already up and walking on his own. He was already cleared for solid food and his breakfast request was chicken tenders and mozzarella sticks, which he ate with no problem. He did have a headache later in the morning and they gave him oxycodone for pain. He was seen and evaluated  by PT, OT, and speech and was told that he would not need any of these services after discharge as he was doing so well. The surgical, trauma, and pediatric team rounded and all said he was doing well. After lunch he was again extremely tired and was having some pain, and napped a lot. On Wednesday, he was wide awake again when i got there at 7 and wanted to dress in normal cloths. After he got dressed he ordered breakfast.  He had a slight headache and the nurse on duty gave him an oxycodone. The surgeons assistant came in right after he took the oxycodone and removed his drain and bandage. She then stated that she felt he was stable enough for discharge already, but since the nurse had given him an oxycodone instead of Tylenol, we opted to stay over one more night to make sure pain could be controlled with Tylenol, and planned for a 9AM discharge on Thursday, June 29th. Ford sent me a text message about 630 AM on Thursday, saying to come and get him, he was ready to come home. I arrived at the hospital about 715, and we were told that the pediatric team and the surgical team would not be rounding until about 945, so we had to wait for them to write discharge orders. They finally showed up at 1030, and did the discharge, but we had to stop at the pharmacy on our way out to pick up an anti-seizure medication for him that he would have to take for the next 5 days. We went to the pharmacy and they did not have it ready, so we waited again, and finally were able to leave the hospital and head for home around 1145. We got home about 1215. Ford is now home and doing very, very well. He still has some restrictions, but does have an MRI and a follow up with his surgeon on Tuesday, July 11th and a follow up with his primary on Wednesday, July 12th.  He will continue to have follow up appointments over the next 6 months, but everything is looking great. We would like to thank everyone that has reached out and helped us in any way since the accident. There may still be a few bumps in the road, but Ford is a fighter and has this!

 

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