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May 19-25

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We had recently got news back from Felix,s MRI that his scans looked great. No reoccurrence no metastases. However we have not spoken with his oncologist at the time we got these results. His nurse just gave us a preliminary  and let us know that things were looking good. On Friday we finally spoke with his oncologist and she let us know that some things have changed. We initially thought that Felix was in a category B but now I found out that he’s in catagory A.
What that means is...The prognosis is not favorable. When The tumor was sent to male clinic it came back with what’s called a 1Q gain and that increases his chances for reoccurrence. The saving part on that was that he was in category B. They know less about this category as it is less aggressive and nothing much would have changed with his prognosis. But now that they think he possibly could be in category A ,and his estimated rate of survival has decreased significantly. Corey and I found this news to be heartbreaking and shocking we are struggling with this immensely. I actually am having a hard time putting into words how I feel. I’m angry I’m mad heartbroken sad. I want to live with hope and feel hope again but in the last 48 hours I  am struggling to feel anything but numb. 
Even before we found out about the change in the category that he’s in Dr. Bendel his oncologist would like to move forward with more treatments in hopes that it doesn’t reoccur. So Felix‘s next step is chemotherapy. She wants to start this therapy as soon as possible. She also would like this to be performed at a pediatric oncology facility so we will be doing all of his treatments at children’s in St. Paul. He will have four days as an inpatient to receive the chemo and then two weeks off and then back again three more times. There’s so many side effects that go along with this, that I do not want for him. This was obviously the choice we had to make but a very tough one. I feel this will be the hardest hurdle for him to tackle. I know he’s a very strong kid, stronger than I am. 

What we need now is more prayers. Prayers that Felix gets through this with flying colors. Prayers that Corey and I handle it with strength. Prayers that he comes out of this, and we never have to look back and wonder if we made the right choice to move forward, because he will live a long happy life.

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