God is GOOD, and He is here!

Thank you Lord, and thank you all!

Today marks 1 year since Evie's last infusion, and what a year it has been. Thank you to all who have prayed and continue to pray for our little miracle, and she IS a miracle!

We were told Evie's protein would not return to normal levels...it has. The goal of medication was to keep it from falling anymore, it has tripled.
We were told she would have problems growing...she's in the 97% of height, weight, head, and still growing.
We were told infusions would get to bi-weekly at best...it's been a year and she is thriving!

I don't boast in my little girl, I boast in her Creator. 

There is no worldly explanation, but we know :)

The docs are thrilled and have moved Evie's appointments to every 6 months just to check lab levels. There is a very real prospect that she can maintain on medication for life, or even come off!  As she grows, her effective medication dose diminishes.  She's continuing to grow, but her dose remains the same, getting less and less potent, and yet she thrives still. Last test showed she still was leaking protein, but her body is compensating and medication is working, and at this point at least nothing else is out of normal. This could always change (and should based on historical data), but we will always pray for full healing. He's brought us this far and there is no doubt in His power. We delight in our baby girl.

Evie is developing quite the personality and running around the house (or yard, or park, or driveway) like a madwoman! She loves to play, prefers to interact instead of TV (hallelujah!) and absolutely LOVES being outside (she's her mother's daughter). She eats like a champion, loves books, and has the sweetest disposition (minus the occasional meltdowns). Every day is a marvel.

We ask all to continue to lift up our girl, that she may be FULLY healed and free of this burden.

Prayer requests:

• His will be done.  That we be granted the discernment to recognize it and the conviction to follow it no matter the path.  This is our daily prayer and will remain the number one request daily.  It is our hope and prayer that God chooses to heal her in a manner no doctor can refute.  It's happening!
• Evie stabilizes fully, and won't need a transplant. We pray that her last infusion (1 year ago!) be the last she ever needs. 
• Her lab values continue to RISE and show full protein retention. Next appointment is in July. 
• We are able to reduce her med dosages, to eventually eliminate the need for any medicine.
• God guides the minds and resources of those researching revolutionary medicines in nephrology. It's mind-blowing what they're working on.
• Courage for Erin and I to walk any path the Lord sets forth for Evie.  We will walk through anything for our baby girl. 

We love you all and will continue to provide periodic updates.