Evan update he got some really good sleep last night so today was much better. Therapy was good today he made some really good progress. OT worked with him with eating and drinking he is having to relearn how to hold his utensils and bring the drink to his mouth instead of bend his head down to the straw. He was on a tilt bed today and after being in bed so much they have to watch you after a half hr he said mom it’s really hot in here so I asked if he was dizzy and he was and felt like he was going to get sick. So I called the nurse and his blood pressure had dropped quite a bit so they lowered the bed and he recovered within about 5 minutes. His drinking has improved but his appetite still isn’t great for example for lunch he ate 8 tater tots and drank his lemonade. Shaun is here with us and Evan was excited to tell dad about his day and the progress he made. I use excited a lot because he’s the type of kid that doesn’t get excited or emotional much. The pic is Evan in the tilt bed. He didn’t think I would post the pic if he made this face haha. Thank you all for your love and support it’s very appreciated.