Journal entry by Lonna Hill —
Hi Everyone!
I know it’s been several weeks since my last update so I thought I would share Erin’s progress since we’ve been home.
When we left Minneapolis we had no idea how things were going to go for Erin. She was very unstable on her feet. She got tired very quickly. She coughed almost all the time which lead to debilitating headaches. It took almost two hours to give her a shower. There were lots of tears and frustration. Erin had a few, too 😬. This experience taught me a few things.
First, medical professionals have some of the toughest jobs around. And I know for sure I’m not cut out for that line of work. The docs and nurses and therapists and helpers that took care of Erin will always hold special places in our hearts❣️
Second, the love and patience that just kind of surfaces is pretty incredible. I have never known such joy from watching my child accomplish a simple task that she had to relearn. I know how lucky I am to still have her. I will never again take that for granted.
And last, Erin is loved... and has a tremendous amount of support from all of you that have been following her journey. She has been asking a lot of questions about the last couple of months because she’s missing big chunks of her memory- not a terrible thing considering what she’s been through. It’s a huge comfort to be able to fill that void for her by showing her all of the cards and messages and pictures of Team Erin shirts! Instead of having to tell her about the pain she was in we can show her the love and support she received. Thank you just doesn’t seem like enough to show my gratitude to all of you❣️
We have a long road ahead. There are things surfacing for Erin that wouldn’t have even been on her radar before this. But I know for sure she will get through this. Tomorrow is another milestone... high school starts for her. It’s definitely not the way I imagined it would be but I’m guessing that’s true for everyone starting high school (and probably any other grade).
We head back to Minneapolis for her one month post op appointments on September 20. We’ll be there most of the week because of all the departments where she has appointments. I hope to update again before then.
Sending all of you love and wishing you a wonderful week!!
TEAMERIN 💙💜💙💜