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Apr 28-May 04

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I can't believe it has been two years ago today that I received a gift from a wonderful family that saved my life. At three in the morning my nurse came in to tell me that they have a liver for me. That was the most wonderful news. It was so earlier in the morning that I didn't want to call anyone. I think I ended up going into surgery at 10 that night. 
There has been up and downs through this journey. It seems like I bearly remember how terrible the surgeries were. I shouldn't say I don't remember because I do still have terrible memories, but it feels like it was longer than two years ago  
Everyday I am so thankful that I am alive. 
Over the past year I have been pretty  frustrated  Because I am still very tired and have a lot of pain. I still have pain by my liver and I have terrible pain in my knees. Which can be due to the antirejection meds. One of the side effects are joint pain. Well they were not lying. They hurt so so bad. I recently got  Cortizone injections and that has seemed to help. Hopefully that continues. Over the past couple weeks I have been feeling better than I have in a very long time. I just expected to feel great.  That was what I was always told that after I have a transplant I would be amazing. I'm still waiting to feel amazing. But I am trying to stay positive because at least I am here to see the boys grow up and  celebrate my marriage to the most wonderful husband. 
John is still so helpful and supportive. I thank God everyday for him. I can't even imagine my life without him. I love him so much. 
I think it has been 8 months or so since I have had to be in the hospital. This is the longest I have gone since my transplant. I go every 6 weeks for blood work and I just have to see my GI Doctor every three months.  The doctors are very happy with my progress. They don't really seem to address my tiredness.  Maybe in their eyes they look at the numbers and the numbers  look good and they know that at least I am alive. Which is very true. There are many days I have to remind myself of that too. 
But over the past year the hospital visits are less and I do feel better. I am so thankful to my donor and her family for making that choice to give me life, and for all the people that continue to pray for me and help me emotionally get through this long journey. Emotionally. This long jour continue to pray for me and help me emotionally get through this long journey. i just think of all the things that I would have missed over the past two years if I did not get my liver.  So thank God and my donor!!!!  
























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