Elliot’s Story

Site created on January 30, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


Elliot was born on November 6th, 2020 at 35 weeks, premature. He was born with a congenital heart defect called Tetralogy of Fallot. Tetralogy denotes 4 parts. So Elliot  has a combination of 4 different heart defects.  The 4 different heart defects include Pulmonary Stenosis, Overriding Aorta, Ventricular septal defect (VSD), and Right Ventricular Hypertrophy. What this all  means is that Elliot's unoxygenated blood gets shunted past his lungs and is circulating without being oxygenated by the lungs. Which means there is an increased workload on his heart. This condition can be treated medically for awhile, but will ultimately require surgical intervention at some point early in life.  Elliot's heart has been monitored closely starting in the womb. After he was born he spent some time in NICU in CentraCare in Saint Cloud. He was discharged on Dec 6th, 2020, after spending 30 days there. Elliot was sent home on some medications to help him thrive and grow. Kristy has been home with Elliot since with the help of his older two siblings, Mya and Gabe, and Dad, Josh. Elliot was doing well, until he had TET spell on January 29, 2021. Josh and Kristy brought Elliot to the ER and it was decided that he be transferred to the University of Minnesota Masonic Childrens. He was admitted that evening. In explanation of TET spell, Elliot had an episode of severe hypoxia and cyanosis. During a spell, blood from the right ventricle flows across the defect in Elliot's interventricular septum, bypassing the pulmonary artery and lungs, thus depriving Elliot of oxygen.

Newest Update

March 27, 2021

Journal entry by Miranda Thomes —

Hello everyone! 

Just thought I would drop a little update on Elliot. 

Elliot recently had a surgery for a hernia on Tuesday the 27th. He unfortunately ended up back at U of M Masonic Children’s with his fontanelle bulging on Friday night. Elliot was given an MRI to rule out many different things, which included heart failure. Elliot’s heart is doing well! Praise the Lord! His team is doctors suspect it is the spinal block he received on Tuesday that is causing the bulging. Elliot’s blood pressure is slightly elevated as well. The doctors believe the bulging will resolve itself over the next few days. 

Elliot, true to his calm nature, is quite the trooper. He sure has those nurses around his little pinky.❤️

Please say some prayers for Elliot, Josh, Kristy, Mya, and Gabe as this whole process has been exhausting and scary. 

My Love,
Miranda
Read More of the journal titled "March 27, 2021"
Patients and caregivers love hearing from you; add a comment to show your support.
Help Elliot Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Elliot's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Leave a comment of support for Elliot

Did you know? A quick comment, no matter the situation (positive or negative), can boost morale by 28.2%.

Comments Hide comments

Read More Journal Entries

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Requests
Go to Ways to Help
SVG_Icons_Back_To_Top
Top