Ella has been feeling so good the last few months and we are incredibly grateful! She’s had 4 infusions and her body is tolerating the drug really well. All of her labs look good, she’s had no reactions or headaches, and she doesn’t mind the port or being accessed. It’s all smooth sailing so far!
Her next MRI is scheduled for May 21st and we should know if the drug is actually working at that point. We are praying and hoping for stabilization or for the tumor to shrink (which would be a miracle!).
This journey can be so draining but we feel so much hope, love and support. We have found some incredible organizations that have brought joy, encouragement, and helped us along the way and we are forever thankful for them. God has truly been so good to us and so faithful. Thanks again to all of you who have been there for Ella and for our family, who check in on infusion days, send us encouragement, are with Ella each day at school and give her so much love, and pray for us each day. Our tribe has been incredible.
