I apologize that I have taken so long to send an update.  After pretty much the same old thing at the hospital, we were able to come home last week!  We are still working on getting nursing help, but for the meantime John and I received training to provide care for Edy. My mom is also staying with us for a bit this summer to help with the transition.  Edy is doing well at home and seems happy.  It is great to be back together - Liza is excited to have us home.  We are learning our new normal.  The biggest things are taking care of the trach and her g-tube feedings.  However, we are determined to continue living our life.  We have already gone to a downtown outdoor event, visited the farmers market, and had a small gathering at the house.  Edy, in true fashion, has taken all of this in stride.

Thank you again for all the prayers and support everyone has given Edy.  We continue to move forward as we wait for her vocal chords to heal.  We ask for prayers for her healing and finding nursing care.  I will continue to send occasional updates through this site from time to time.  

We are so grateful for all the care and help Children's Hospital of Colorado has given to Edy.  They have a big fundraiser coming up called the Courage Classic, which is a bike ride over the mountain passes of Colorado.  If you are looking for a charity to donate to, I have a couple friends riding in this.  Their pages are below.

Andrea Polito - Oncology nurse at Childrens, riding for the Center for Cancer and Blood Disorders
http://support.childrenscoloradofoundation.org/site/TR/CourageClassic/General?px=1055496&pg=personal&fr_id=1600

Fr. John Nepil - Riding for the Cardiac Climbers and the Heart Institute 
http://support.childrenscoloradofoundation.org/site/TR/CourageClassic/General?px=1275955&pg=personal&fr_id=1600