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May 19-25

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Hello Everyone!

I know its been quite awhile since I've posted on here but honestly, life has just been plain busy and we have been soaking up all the family time this quarantine. A lot has happened since the last time I've updated. Easton has made some big strides in his motor skills and development over the past 2 months. He has advanced his vocabulary with quite a few new words and is now a walking man. He starts his days with full sentences that only he understands and the biggest giggles. He's the worlds best snuggler and can become the happiest kid when given his blanket. These past few months have been a time of growth for him. He has faced some big challenges in the last few rounds but we are so proud of the developments he has made. 

This week is round 8 for him. He was put under anesthesia yesterday and had his chemo eye injections. So far, its been a little bit more challenging this time than in times past. In his last round, Dr. Brennan(his oncologist) and her team said he was making great progress and that there may be a chance that they would only have to do injections in one eye this time however, they saw it fit yesterday to do it in both. There is still a tumor sitting on his optic nerve in his left eye that they are concerned about and continue to monitor closely. They are continuously looking for a window of opportunity to laser if it removes far enough off of the optic nerve to do so. BUT, we are still seeing slow, consistent progress with the tumors shrinking and have not seen any concerns with his vision that we can tell which is a miracle in itself! We continue to wait for the complete healing but for now, we are thankful for the mini miracles that we are experiencing throughout this season. 

He has unfortunately experienced quite a bit of nausea this time and large amounts of anxiety with his eyes being swollen shut. At this point, we are just trying to make him feel as comfortable as possible. He has been wanting a constant shoulder to lay on or hand on his back to know he's not alone since he's unable to see so we have all been taking a shift of holding, walking, snugging and constantly reassuring that he's going to be alright.

We are currently in the hospital doing his day 3 of 5 chemo. They were able to give him a larger dose of Morphine and some Ativan for his anxiety. He also gets 4 other medications every day of chemo to help with his nausea. Due to his pain, we are administering Morphine every 4 hours. He has not eaten since Tuesday and everything he drinks he has thrown up. They are sending him home on fluids tonight to make sure he's staying hydrated and will reevaluate him tomorrow. If we don't see any improvement, they are considering admitting him. 

Overall, he is taking it like a champ. He has not had much strength to even lift his head but woke up this morning chatting and trying to play which lasted for about 5 minutes until he wanted to lay back down. Please continue to keep him in your prayers as he finishes up his chemo the next 2 days. 

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