Journal entry by James Stenson —
So as we have slowly progressed through this process...the doctors have been working on narrowing down a diagnosis. We have a neurologist, a nephrologist, a cardiologist and a hematologist all working to figure out what is going on. And of course a primary care dr. Dorothy has had, nerve conduction study, multiple mri's, cats scans, x-rays, eeg, and more blood draws than lance Armstrong at a tour de France. Today we are at the hospital for a bone marrow biopsy. Which may or may not lead to a kidney biopsy. The working theory is that Dorothy has something on the MGUS continus from MGUS (MONOCLONAL GABA...OF UNCERTAIN SEVERITY) TO AMYLOIDOSIS, TO MYELOMA TO LUKEMIA. The hematologist doesn't believe we are at leukemia. But can't tell where we are on the MGUS train, until after today's bone marrow biopsy.....so while it has been a while, there just wasn't much information to pass along. She, and I are both tired of not knowing why all these crappy symptoms are happening. We are ready for a diagnosis and treatment plan....we hope.
She is continually sidelined with orthostatic hypotension, and severe leg neuropathy to the point she can't feel below her knees. We hope to have more clarity soon. Calls of support are welcome, if she doesnt pick up, leave a message. visits are hit and miss.
As always, thank you for the love and support....after all is said and done, I remember I am married to the strongest woman in the world.
Jim s
She is continually sidelined with orthostatic hypotension, and severe leg neuropathy to the point she can't feel below her knees. We hope to have more clarity soon. Calls of support are welcome, if she doesnt pick up, leave a message. visits are hit and miss.
As always, thank you for the love and support....after all is said and done, I remember I am married to the strongest woman in the world.
Jim s
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