Bronchoscopy #2 down.  They said the results from #1 was a bit better than they thought.  These procedures they are using PhotoDynamic Therapy (PDT) where I was injected with a drug that makes cells photo sensitive where if they are exposed to light it will kill the cells. In the Bronchoscopy they use light to kill the cells and clear a path.  I now have to live like a vampire for 30 (could be up to 60) days for the drug to dissipate.  Indoors and out.  It light in general not just UV light outside.  Some indoor light but can't be bright, direct, or concentrated. Bronchoscopy #3 is scheduled for Monday for further clean out.  Hopefully they will be able to balloon it or put a stent in to keep it clear.   I have been spitting much gross stuff up which is good pneumonia seems to be getting better. Feeling better on that front but still challenging with all the drugs.  Don’t sleep well and sweat all night as the bed/pillows are plastic and just have a sheet on them.

I’ve been on feeding tube and still unable to talk much.  Feeding tube seems to be going better and I didn’t throw up yesterday … ahhh the little things.

Hoping to start respiratory therapy again today to help break things up in the lung.  Also need to work with voice therapy to try to get some voice back and eat something.  Right now, on my charge expected discharge is the 18th but not sure how that works if I can’t drink.  Drinking is more of a problem than eating. After 2 weeks ready for different surroundings and to see the kids.  Time has gone quicker that I would have thought but it seems like every 3 hours you get something done (medicine, vitals checks, etc). Sometimes you’re just zoning out resting watching re-runs and then all the sudden it’s 3 hours later.

Things still figuring out:

• Boston consult- now back to May 27th. Hoping my Oncologist here can get some upfront answers before actually going there. I don’t want to wait that long.
• UCSF- I found a trial at University of CA San Franscisco that my oncologist might be slightly better in his mind so we’re contacting them too. My oncologist was out most of this week so slow progress hopefully will pick up this week.
• Timing of Stereotactic radiation on new brain spots
• Determine if spot radiation on lung can help with voice box nerve pressure

Mom and Dad were able to come out again so nice to visit with them, would be nicer to be going out to a nice dinner or doing something fun.

Lastly for today, Thank you to everyone for the prayers, texts, and well wishes and other deeds.  They might not get responses or quick responses but all are appreciated.