DJ’s Story

Site created on August 18, 2018

    Welcome to "A Lion's Den" CaringBridge website, in honor of DJ Scholtes. This site is used to keep family and friends updated in one place.  Showing support and words of hope and encouragement are also highly appreciated. Below, is the backstory that lead to the beginning of this website. Thank you for visiting and please come back again!


    On July 31st, 2018, DJ went to see a dermatologist for a mole removal. The procedure was simple enough, just one appointment to remove the mole, no previous appointments, labs or concerns. Two days later...DJ received a phone call with unexpected news, "melanoma". The dermatologist explained over the phone that the mole had grown 5mm down into DJ's skin, a depth that raised concerned with the doctors that it was an aggressive melanoma and already spreading.  Surgery, he was told, was inevitable.   
    Once  the word "cancer" was spoken, he was immediately referred to oncology. The concern of spreading (metastasizing), he realized, wasn't a joke, and the heaviness of reality set-in.  By the end of the phone call, DJ already had appointments set-up for consults, surgery, nuclear medicine, oncology, and follow-up scans year out.
    
And so it began.  

    On Thursday, August 9th, DJ checked into Gundersen Health System of La Crosse, Wisconsin at 6:30 am for surgery to excise the marginal region of skin and fat surrounding where the mole was removed one week prior.  Standard procedure for melanoma is to remove 2 cm margins around the site of a mole, relative to the depth and width of the growth.  DJ needed a 3 inch diameter circle of skin removed, including tissue layers down to the muscle.  To close the wound, the surgeons made a 9-inch incision lengthwise, through the wound to close and suture the skin. The skin had to be stretched to cover the site; it limited his movement, thus mobility was restricted.  Furthermore, DJ had a sentinel lymph node resection.  This meant that the leading lymph node needed to be removed to test for cancerous cells, it was located near his groin.  At 1:15 pm, surgery began. The surgery team removed not one, but two sentinel lymph nodes and closed two incisions on DJ's right leg. He was able to go home at 6:30 pm that day. Over the weekend, he rested while his wife was able to care for him and keep him comfortable.  The next week, biopsy results revealed that no cancerous cells were present in the skin that was taken surrounding the original site. However, pathology results showed both sentinel lymph nodes tested positive for melanoma.  The cancer was indeed spreading.
    
    On Tuesday, August 14th,  DJ was seen for follow-up with the oncology and surgery providers.  He was able to move his leg a little more by this time, so they said it was time to move forward and schedule the PET and MRI scans to see how advanced the cancer was and to choose the course of treatment. The oncologists and "melanoma guru" discussed treatment options with DJ on August 20th, what could be expected and how to prepare while the results were pending from the PET and MRI.
                                                                                                                                          

    This is an ongoing story and will be added to as the journey continues. DJ and Jomarie aspire to provide updates and connect with friends, co-workers, family and all that may be concerned or wondering about further news or progress. Thank you for reading and please consider showing support for DJ when you visit his CaringBridge website "A Lion's Den".

Newest Update

Journal entry by DJ Scholtes

It's been a long time since my last update!  After my first treatment things became fairly routine (treatment, consults, dermatologist check-ups, etc).  So I didn't post much.

Now I have updates worth sharing :)

First, I had my second round of PET scans yesterday (January 8th, 2019) to check for metastatic Melanoma.  I'm VERY happy to report that my scan came back clean!  I'm still clear or Melanoma!

Second, the treatment I'm on had caused some complications over the last several weeks.  On November 12th I reported having stomach pains, mostly a strong burning sensation.  We discovered this was due to treatment related Gastritis (stomach was overproducing acid).  This was taken care of with a medication called Protonix (which I'm still taking). This has helped greatly.

On November 27th I had my third round of treatment, and shortly after that day I began feeling some abdominal pains.  I thought it was my Protonix wearing off, so I doubled the dosage according to my doctor's instruction.  About midway through December, the stomach pains were still present, but I was able to tolerate them with a regiment of Tylenol and Ibuprofen, and eating soft foods.

On December 25th, Jomarie and I left for Los Cabos, Mexico for her sister's wedding.  It was at this time when my stomach pains grew to the point of excessive and intolerable.  I experience severe cramping in my upper abdomen and mid back, and the pain was augment whenever I ate or drank anything.  I never ran a fever, but I often felt nauseated and warm.

When we returned home I immediately called my doctor and went in for a check-up on January 4th.  They ran a CT scan and discovered I was suffering from treatment related Pancreatitis.  Basically, my Pancreas was inflamed and overworking, which is not good.  My doctor put me on Prednisone (steroid) and Tramadol (pain killer), to bring my Pnacreas back to normalcy.

Because of the Pancreatitis my doctor will be tracking my blood sugar levels over the next few months to make sure the treatment didn't damage the Pancreas and cause Insulin producing problems.  We are also evaluating the best route for moving forward with the treatment. 

Phew, that's a lot of info all at once!  So, all this to say that I'm feeling good today!  I'm confident we'll be able to move forward with treatment after some time of healing. 

My next evaluation is February 5th.  This will be the time I know more about how we're going to proceed!

Thanks for the prayers and well wishes!  I'll keep you all posted on more of this crazy ride!    
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