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Started family training this week. Learning how to operate all of the equipment he will be using at home. He had his lungs all cleaned out today. He is having tube issues again. Ideally surgery would be needed to just place a j tube directly into his jujenum so no displacement would happen. They say that is much too risky though. Argued with a surgeon yesterday trying to get him to understand this entire tube scenario. Very frustrating for me, I can't even imagine how Josh feels. They said they may have to transfer him to Shands or Mayo where they are more specialized and then back to rehab. Are we ever going to get off this roller coaster ride?
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