David’s Story

Site created on April 28, 2019

Dear Friends and Family,
 
Welcome to my CaringBridge page, where you can stay updated on my journey through this difficult time.  Have no fear, though, as I still have many more songs to sing! 

Here's how it started:  Back in February I noticed a deep cut on the posterior lateral portion of my tongue.  Didn't give it too much thought, even though it was fairly painful.  Maybe caused by a tortilla chip??  At a routine dental checkup the very next week (thank goodness for the timing!) my dentist noticed the laceration and, as a precaution, referred me to a maxillofacial surgeon.  After trying a steroid cream for a few weeks, the cut still wasn't healing like he had hoped, so he performed a biopsy and sent the sample to MUSC in Charleston.  I got the results on Wednesday, April 24th: fairly aggressive squamous cell carcinoma.  Pathology didn't indicate virus (HPV), nor do I have other risk factors for this type of cancer, so this was not looking good at all.

That night, Laura pulled all of the strings she could in the medical community and we were able to see a local ENT who specializes in head and neck cancer the very next morning.  That surgeon, in turn, pulled all the strings she could and got us in to see world-renowned surgeon Terry Day the VERY NEXT DAY.  That Friday, Laura and I drove to MUSC, where Dr. Day and his (large) surgical team, including reconstructive surgeon Dr. Pete Hornig, were waiting for us.  It turns out these two have performed hundreds of surgeries together and their results have been incredible.  After our visit with them, many of our fears were assuaged.  The plan is to resect the tumor on my tongue, leaving 10mm margins on all sides, and then reconstruct the tongue using skin and tissue (along with an attached artery and vein), which will then be implanted on the remainder of my tongue and connected to an artery and vein in my neck.  My jaw literally dropped as Dr. Hornig described everything that might happen during the 6- to 10-hour reconstruction phase of the surgery...what amazing surgical techniques he has at his disposal!  Recovery times will totally depend on the size of the resection and reconstruction...they said 3 to 10 days in the hospital, depending.  I'm looking at 3 to ??? weeks of recovery time afterwards.  They gave us a 50/50 shot at going to Peru on May 26th, though!  Guess we'll know more after the 7th.   

I will return to MUSC on Tuesday, April 30th for CTs and PET scans, as well as visits with the radiation oncologist, dentist, and speech therapist.  I'll be sure to post updates.

I know your thoughts, prayers, love, and positive energy will help keep me going during the difficult times ahead, and I am grateful for the wonderful support you will provide me, Laura, Megan, and Thomas.

I love you all and look forward to singing for you again very soon.

Newest Update

Journal entry by David LaBoone

Over the past few days I've been biting my flap (reconstructed portion of my tongue) much more often than in the past two years.  Bad, yes, but not painful (remember, this part doesn't have many nerve endings in it).  So when I went to carefully inspect the damage, my heart sank when I discovered a lesion and, even worse, what felt like a lump. 

In the exact same spot as the cancer my dentist discovered in the spring of 2019. 

Panic set in.  I mustered up the courage to tell Laura, and only minutes after speaking with the on-call head & neck specialist, she received a text from my surgeon, Dr. Day (who occasionally shares patients with her).  He chided us for not contacting him directly and told us to see him in clinic first thing Monday morning.  Yes, we will be there!

When we arrived, he was not only ready for us, but had already booked the operating room for me, just in case my problem was something urgent.  After a quick look in my mouth, he reassured me that what I had discovered was NOT cancer, but rather a lesion formed by the result of my flap loosening up over time.  The time had come to perform a "revision" surgery (something that had been explained from the beginning of my cancer/reconstruction journey) to reduce the size of the flap, and he revealed that the OR would be ready at 1pm if we were interested in doing it today.  YES was my immediate answer.  Let's get this taken care of.  Megan and Thomas were with their grandparents and would be thrilled to have yet another sleepover.  And I was ready to turn this nightmare into a positive step forward.

Although we had to wait around for several hungry hours (for me; Laura ate a yummy sandwich) at the ambulatory care/surgery center, once things got rolling shortly after 1pm, they drugged me up, took me back, and it was 4pm before I came to.  An Arby's milkshake on the way home helped assuage my hunger, and once we settled in at home Laura suggested a movie - La La Land - to force me to rest my tongue and keep me from talking.  The movie (a really sweet story about following your artistic dreams) was the perfect ending to an intense few days, and I was grateful to share that special time with her as I recovered.  No pain meds required, even, which is an additional blessing.

I can't express how lucky I am to have lightning-fast connections to an amazing medical team who can transform my deepest worries into something positive.  As Mike Rosenberg (Passenger) sings in one of his songs from an album that was a beacon of hope for me during my darkest days of 2019, "Sometimes it's something, sometimes it's nothing at all."  I've been spinning that album a lot over the past few days, hoping its message would turn out to be true.  And it has.

May this holiday season be filled with countless blessings for you and your loved ones. Hug 'em tight, and give thanks for all that is good in your life.

With so much love and gratitude,
Dave

PS - here are just a few photos of what we've been up to lately…

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