Journal entry by Tracey Paulson —
After the move last Friday out of ICU on to a regular floor at Avera my mom had an uneventful weekend, which was ok. With it being a long weekend there were no therapies for 3 days she got a little frustrated, but it gave her time to heal and settings on the vent were able to be weaned downed which was also good. The tube feedings were started again last Friday, and the dietician has been consulted quite a bit as the tube feedings have continued to irritate my mom's stomach. Tuesday brought the return of therapies and the talk of potential being transferred to a rehab facility.
We only have 1 facility in South Dakota that will take patients with vented Trach's with patients that need to be weaned off of the Trach, that option was Select Specialty Hospital located in Sanford Hospital. We are thankful that my mom was accepted there, otherwise our other options were Omaha or Minneapolis. What we didn't know was the transfer to rehab was going to take place on Wednesday.
Late Wednesday afternoon my mom was transferred to Select Specialty Hospital, the transition has been interesting, but we are getting through it. They will work with her on weaning her off the vent through the various steps, physical and occupational therapy are working with her on regaining her strength. Speech is working on getting a device to put in her trach so she can maybe try to start talking. That has been frustrating for my mom not being able to communicate via voice for the last 3 weeks. Once off the vent they will also work with her on swallowing etc.
Our prayers are that my mom's diaphragm continues to strengthen for her to be able to wean off the vent and that she can breathe deep enough to keep the dangerous gas levels out of her system. Prayers for her as she continues to work with Physical, Occupational and Speech Therapy to regain strength. Prayers the maintenance drug for Myasthenia Gravis keeps my mom from reaching a critical status again.
Thank you for the continued prayers, all the phone calls, text messages and cards we would not be this far without all the support!!
Lamentations 3:22-23 "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; Great is His faithfulness"
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