Journal entry by Griselda DeAnda —
Dariell has turned 4 months, almost 5! Lots of changes have happened. The biggest change though, is Dariell's NG tube was pulled to see how he well he could drink without it. Last March. We struggled for a few weeks, having to feed him small amounts every hour, includingnighttimee. His intake and weight have been enough, so thankfully, we haven't had to use it again. Dariell is growing, and he loves to giggle and play. Dariell continues to be the happiest boy! His heart has remained relatively healthy, and we were cleared by his cardiologist for follow-up in 6 months! Dariell has met most family members, and we are just starting to visit public places! Dariell loves the outdoors and music! Things are starting to "feel normal now."
Dariell ha cumplido 4 meses, ¡casi 5! Han ocurrido muchos cambios. Sin embargo, el cambio más grande es que le quitamos la sonda nasogástrica en marzo a Dariell para ver si podía beber sin ella. Luchamos durante algunas semanas y teníamos que alimentarlo con pequeñas cantidades cada hora, incluidas las nocturnas. Su ingesta y peso han sido suficientes, así que afortunadamente no hemos tenido que volver a utilizarlo. Dariell está creciendo y le encanta reírse y jugar. ¡Dariell sigue siendo el niño más feliz! Su corazón se ha mantenido relativamente sano y su cardiólogo nos dio el visto bueno para realizar un seguimiento en 6 meses. Dariell ha conocido a la mayoría de los miembros de la familia y ¡recién estamos comenzando a visitar lugares públicos! ¡A Dariell le encanta el aire libre y la música! Las cosas están empezando a "sentirse normales ahora."