To all our friends and family can you please sign this petition and share it afterwards? You don’t have to donate we just ask that you please sign the petition at the below link from change.org and share it for Daphne. You all know the seriousness of Daphne’s Batten Disease- CLN2 and our biggest hope along with faith are these gene therapies that need to happen for Daphne and the other children battling CLN2. #theskyisfalling #genetherapy. #FDA #regenxbio #RegenxBio #fightingforcln2

 

https://chng.it/wRZjqXZk9G