Dan’s Story

Site created on November 16, 2022

For the last year, Dan has been experiencing severe acute and chronic pain that has resulted in several visits to the Emergency Room.  This gastrointestinal pain has resulted in rapid weight loss, lack of desire and ability to eat, headaches, and extreme fatigue. He has seen many doctors, including being referred to many specialists. He was diagnosed with a blood clot in a dissection in a branch of his aorta which supplies blood to his stomach and small intestines. The clot was treated with anticoagulants, but it was decided that it would be best (and safest) to monitor the dissection for any changes. Unfortunately, his symptoms and ER visit’s continued. 


Ultimately, this has lead us to Mayo Clinic in an effort to cast a broader diagnostic/resolution net. Initially, since there was not a clear diagnosis of his persistent symptoms despite the countless tests, it was determined that a watch and wait plan would be the conservative plan. Five months after starting care with Mayo, an 8 member peer surgical team met and looked into every aspect of Dan’s case. It was determined that surgery seemed like a reasonable next step due to the persistence and severity of symptoms, and that quality of life continued to be impacted. It was during the pre-operative appointment when we learned that not only had this vascular surgeon not ever done this exact surgery before, but he was not aware if this having been done anywhere in the country. Dan’s complicated case and symptoms are very rare.  In this arena that’s not always the words you want to hear.

With continual prayer, consultation with family, and friends, Dan did decide to proceed with surgery as the best option to restore his health, wellness, and quality of life.  The caveat is that this surgery may not resolve his symptoms, could lead to complications, and may result in new long-term issues, and there is the chance he may not make it through surgery.

Here is the surgery plan in medical term:  A Mesenteric/SMA reconstruction.  The Mesenteric artery exploration, longitudinal arteriotomy,  resection of patulous area and dissection flap, and patch closure with preservation of as many mesenteric branches as possible. 


Dan has been given a 70% chance of having no major complications from this surgery. Ultimately he concluded that he wanted to Have a Chance to Feel better, restore his activity level, and most importantly… GROW OLD NOT JUST ON THE SIDELINES OF THE LOVES OF HIS LIFE. HE DEMANDS TO BE RIGHT IN THE MIX.





Newest Update

Journal entry by Robin Pintozzi

Hello. It has been some time.

It’s an interesting place to be when you find yourself creating and updating a site here.  when someone’s story and conditions are acute; knowing when and how often to post seems to come quietly predetermined. Post the acute situation/crisis the lines seem less clear even though the need for support, PRAYER, consoling, cheering up, and wisdom are needed more than ever.  It’s a natural progression 

Times and dates  are fascinating. December of 2022 in one breath seems like a world away; and yet the same time and date is as real as this moments breath.
Time in the realm of trauma, disease, illness, healing, and the unknown is less “fascinating”,  but rather contributory to the ongoing ups and downs that the body and mind goes through. 


Dan would say that he’s absolutely a different man than he was leading up to his surgery. A different man as well from the suffering he experienced that resulted in the surgery. Again, a different man today.  I believe if he’s being truthful he would say God made the correct decision with how his medical story and subsequent journey has unfolded. I do believe Dan would say that he’s having a hard time. He would also say he’s scared, He would say that his body betrayed him; he would say his body has been put through a lot over the years. He too would concede that his body is still not where it could be. 
What I mean by this is that each day is a crap shoot. The pains, gastro interruptions, bloating,…..contribute to once again being stopped in his tracks, feeding the panic that is bubbling  up and over at times. He had learned the benefits of deep breathing, prayer, and medications. 
This cycle from my personal and professional experience is both freeing and freighting. We find ourselves wanting and needing to get off this perpetual rollercoaster? When/if  I can get off , when will I be back on?  Knowing the mere mention of it or even the slightest to greatest pains anywhere in the body  back to square 1. Except square 1 is a misnomer. You in real time cannot tap into your progress while watching Hope fade away. It breaks my heart to have seen him put on a brave front while simultaneously writing a letter to convey his love and gratitude for our love story no matter what the outcome is. 

Praise God that he is the creator of our story. Praise God we are surrounded by his grace and wisdom along with wrapping us up in the loving arms extended by each of you.

We are blessed to be getting closer to our son Nick and his amazing fiancé Kyle’s wedding in February. We are blessed to learn we are reminded just how old we are as our beautiful daughter Grace and her wonderful boyfriend Matt are expecting a baby  on December 26th; just 4 days before Dan and my brother Will’s birthday. We are blessed by the amazing man of God that Jack is to us, his career, his friends, and anyone that gets to spend time with him 

We don’t quite refer to this next update as an obvious blessing. We do believe that God has and is working through this experience. We thank him and claim the promises  that we have been bestowed as children of the highest God! 
Almost to the day, last week Dan along with thousands company wide were fired effective immediately. Return all that belong to the company were some of the directions. However, some of the unspoken words included leave your livelihood, your dignity, your pride, professional future here with us following a zoom type mass cattle call. 
Charlie Brown voices fill your head in chorus with  NOW WHAT on steroids.  Mortgage,  lost a car,  bills, medical expenses, future, still feeling vulnerable within my own body,….

As I’ve Shared before, Anxiety and panic attacks are a new super power Dan has been gifted.  😳
As a in recovery superhero with the same gifts I can relate all too well. When you’re experiencing this it’s beyond upsetting and can quickly spiral. It’s tricky to decipher if is it my body further betraying me once and for all? Is it the panic that is triggering my body, is it both? What the he** is this? Please make it stop!

I am so proud of Dan that he is increasing in his comfort level to communicate a tiny bit of this with me. By tiny I mean he more readily conveys physical medical symptoms  as he experiences them. We try to dissect potential origins along with conservative actions.
The anxiety and panic is generally more a silent self suffering.  He knows to grab his purple prayed over  handkerchief blessed with Holy Water and his Snoopy blanket. He is better to discern   when he can benefit from anti anxiety as needed medication .  He knows to Thank God for all he has and who he has molded him to be. 

Please lift Dan up in prayer this evening and beyond. He is clear that God is the author of his story. We are are grateful that each of you and many others are loving us. We are here in this time for a very specific purpose.  May our journey highlight the grace of God that is freely given to his children.
Please include in your prayers his work situation. Please pray for our strength to fully lean into Gods plan for us. By surrendering our earthy control his plans will shine for us to clearly move in the direction he has for us 

thank you so much 

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