Dan’s Story

Site created on November 15, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


Here's the rundown of Dan's cancer journey:
Spring 2015- Renal cell carcinoma (RCC)  (kidney cancer) Kidney removed - no problems!
August 2016 - RCC metastasized to right femur which broke. Titanium rod put in plus radiation . Started chemo pill
August 2017 - RCC growing again in femur. More radiation. Changed to infusions. Works well.
August 2019 - RCC is growing again in femur. Changed to a different chemo pill (Cabometyx) 
     Lost pigment in hair, skin; no appetite, lost 60-70 lbs.
February 2020- scans look better, lower dose of Cabometyx.  Weight loss slows down.
May 2020 - RCC growing in right femur again. Change treatment to Opdivo+Yervoy infusion every three weeks. After two treatments, severe  side effects, lost 25 lbs in less than three weeks. Needed IVs, and prednisone.
September-October 2020 -Slowly weaned off prednisone, otherwise side effects come back.
November 2020 - Feet and legs swell, night sweats
May 2021 - RCC growing again. Started pills, Linvema + Everolimus.   Doing much better. No side effects. 
    Visited Utah National Parks, and even hiked! 
June 7, 2021 - right leg swelled up huge from toes too hip. Very painful. No known cause. Couldn't walk or move much.  Swelling went down after six or more weeks. 
October 2021 - RCC growing in soft tissue (muscle) around femur, spot below right knee, plus a few small nodules in lungs.
May 2022 - RCC in lung nodules are growing. Started different chemo pill.
August 2022 - RCC still growing. Change chemo pill, but in same "family." (last resort)
October 2022 - Dan experiencing shortness of breath,  tightness in chest, cough


10/29/22 -11/3/22 Dan admitted to Nebraska Med Center Hospital with fluid on his lungs (causing the latest problems). His right lung had some fluid, but the left lung was full of fluid and "collapsed" because of it. In the hospital for seven days, they drained three liters of fluid from his left lung, inserted a PleurX catheter/drain to be able to drain fluid at home. 


11/12/22 I (Deb) was draining one liter of fluid from Dan's lung every other day, but on 11/12, Saturday, I noticed that the fluid had more blood in it. 


11/13/22 Dan was feeling more chest tightness and shortness of breath, as well as the feeling that food/water "wouldn't go down." I went to drain more fluid, but it was looked like mostly blood, and brighter red. We called the doctor answering service and the recommended that we come in.


Dan was admitted to the Werner Cancer Hospital ( Buffet Cancer Center, part of the Nebraska Medical Center), Progressive Care Unit (step-down from Intensive Care) for Hemothorax, "an accumulation of blood in the pleural cavity."  



























Newest Update

Journal entry by Deb Heuer

The Celebration of Life Service for Dan will be tomorrow, Monday, December 5, 2022 at 4pm at Trinity Lutheran Church, Fremont, NE. 

It will be live-streamed (and remain available) at https://trinityfremont.com/live/  and on the Trinity, Fremont, Nebraska Facebook page.

Patients and caregivers love hearing from you; add a comment to show your support.
Help Dan Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Dan's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top