Colleen’s Story

Site created on September 28, 2023

On September 5th of 2023, Colleen was admitted to the hospital for a bowel obstruction. She has been in and out of the hospital the last few years due to multiple blockages, and this time felt no different. She had always been told that the blockages were likely due to a previous abdominal surgery and that there wasn’t much they could do about it, except treat the pain until the blockage passes. 


During this specific hospital stay, the doctor finally agreed to schedule a laparoscopic surgery to see what was going on. The surgery was set for the following day, September 6th. During the procedure, the doctor saw what she believed to be Crohn’s, and resected part of her small intestine. After the surgery, we were told that what they saw was consistent with Crohn’s, and Colleen was provided some referrals to visit once she was discharged. On Friday, September 8th, the doctor received the pathology report and gave Colleen the news that she has NET cancer (neuroendocrine tumors). 


While any cancer diagnosis is a shock, this is something that was in the back of our mind as two of Colleen’s brothers were also diagnosed with NETs. This was brought up to multiple doctors and turned down multiple times. She also had 6 CT scans over the course of a few years, none of which caught the cancer either. A PET scan was scheduled for 6 weeks out, so she had time to heal from the surgery. The PET scan later confirmed the diagnosis of stage 4 NET. This page serves to update friends and family along the way.  

Newest Update

Journal entry by Katie Chandler

Family and friends, 

Thank you so much for the outpouring of love, support, and prayers! Our family, and our mom, certainly feel it. Here is a short update from her appointment on Wednesday!

Lanreotide Round 2
I took my mom to her second Lanreotide injection two days ago - this is a chemo injection that helps keep the tumors under control. She started the appointment by meeting with her oncologist and his Nurse Practitioner to discuss side effects from the first injection. After the injection, she experienced a variety of terrible side effects that lasted throughout the month. We later learned that Lanreotide is slow release, which explains why the side effects didn’t stop soon after the first injection.

The Nurse Practitioner was able to give my mom a few suggestions to manage the side effects of the shot. We are hoping this brings her more comfort this time around, especially with Christmas coming up. 

A lot of people have been asking how long my mom will have to get Lanreotide injections. If they continue to control the cancer, the answer is indefinitely. If the injection doesn’t control the cancer, radiation will likely be the next step. 

Prayer/ Positive Thoughts
-For the side effects of the injection to become more manageable. 
-For the injection to control the tumors. 
-For my mom to have energy for her everyday tasks, to workout (which is good for healing and maintaining side effects of the injection) and so she can enjoy the holidays with family. 

How Can I Help? 
We are so grateful that people have been ready and willing to help however they can. This question can be hard to answer because asking for what she truly needs can be hard, and sometimes she/we don’t always know what is needed. If you are in a season of wanting to help, offering something tangible takes the mental load out of that question. i.e. “I’m going to make you dinner. Tell me what night you will be home.” or “I’d love to keep you company, when are you free?” 

Ideas: 
-Everyday tasks (which can be difficult with her fatigue and lack of sleep). 
-Keeping her company/ doing something fun or going for a walk to get her up and moving. 
-Dropping off a meal or a small care basket. 
-Offering to drive her to appointments - we will most likely bring her to her appointments, but it helps to offer in case we are not available. 
-Sending a card so she knows you are thinking about her.

To end the post on a positive note, my mom got some baby therapy & dog therapy at the appointment. Reese, Colleen’s youngest granddaughter, brought out the big smiles while we were waiting for the doctor. Before her injection, she also got to visit with Welby the therapy dog. She is a sucker for babies and dogs, so this was a great combo! 

Thank you again, and feel free to reach out to me for any questions! 

Katie

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