We are getting there. It is a slow process and lots of setbacks but we are getting there. I wish they would not tell her maybe you will get to go home (this) day, and just be like ok today is the day! It is disappointing to me to hear no not tomorrow every day so I can only imagine how it feels to her. She is so weak. But she is engrafting, praise the Lord!! But with engraftment comes a whole other set of issues. While I have been here she has developed a urinary tract infection and a horrible rash which they are not sure exactly where it came from but think it could be meds or it could be a little bit of graft vs. host disease. One of her meds causes a tremor. She is probably ready for me to go home, I am a bit of a slave driver but I really wanted her to get out before I go back home. But that is not going to happen😢. He told her this morning it will probably be Monday. Her kidney function is the main thing keeping her here now. She is doing pretty good with eating and drinking since they took her off of her iv nutrition. We have been walking and exercising 3 times a day and her legs are sore so that is hard for her right now. Plus the weakness.
I know everyone is concerned for her and people have been calling and texting her every day, cause I was one of those people. The truth is, she can’t text because of the tremor and she just doesn’t feel like talking yet. I know she appreciates the concern. And the prayers. Please keep those coming.