Chuck’s Story

Site created on September 23, 2019





Chuck and I want to Thank you for visiting his CaringBridge page.  We have set this page up to share updates on Chuck’s transplant journey, surgery and recovery.  

As many of you know when Chuck walks into a room everyone knows!  That smile and laugh are so contagious!  There’s never a dull moment with him!  He just has that way about him.  Maybe because he looks like Ted Danson and everyone wants to be by him?   🤣🤣

Chucks love for God, life, family and friends is like no other.  He has been a Rockstar through it all.  Even while in pain and exhausted he always has a smile for our 
pictures and a positive attitude.  Chuck still goes to work every day and fights the fight.   

When Chuck was first diagnosed with Diabetes, we never thought it would lead us to where we are now.  His team of doctors have come to the conclusion that having undiagnosed diabetes for 10 years has destroyed his liver.  They diagnosed him with NASH.  Nonalcoholic steatohepatitis is a syndrome that develops in patients who are not alcoholic; it causes liver damage.  

With this diagnosis came all of the symptoms that go with it.  Some came right away, others are now manifesting themselves which indicates his liver disease is aggressively progressing and his health is declining.  With his liver and health declining Chuck has now been put on the Dallas and Fort Worth transplant list for Baylor Scott & White.  

When we get that call to go to BSW downtown- Roberts Building, we need to be ready to go!  Game on.. let’s get this liver!  There could be a time when we get the call, go and the donors liver fails and we go home and wait for the next call.  

After the transplant Chuck will be in ICU for a couple days and then moved to a room for about 4-6 days.  
When released he will be sent home “recover”.  This will intel 6 weeks of biweekly doctor appointments downtown Dallas (6am-3pm) to watch his liver for rejection.  They say that 50% of the livers are rejected... but they have a successful regimen to help combat the rejection.   

After the initial 6 weeks he will be seeing his liver team weekly and then monthly for a year.  
Chuck will be out of work at least 4 months during his recovery.  He will be on anti-rejection meds for the rest of his life.  
The great news is that he will have a new liver and all of his current symptoms of NASH will be gone!  What a blessing. 

While we are excited that Chuck is on the donor list for a liver, we are very aware that someone has to die before he can get one.    A family will lose someone that they love.  
We are so very Thankful for the unselfishness of someone to donate their organs to give others life.  We will never be able to thank them or their family members enough for this incredible act of kindness.  

We will be using this page to share our journey and updates on Chuck and his recovery.  Please feel free to use this page to send Chuck messages.  I know he will enjoy them. ❤️

We would also like to use this as a platform for organ donation.  While it is a very personal choice to be a donor, we ask that you consider adding Donor to your driver’s license.  When Chuck gets his liver there are still so many others that need an organ donation.  


Chuck has also been asked to participate in a liver transplant research program.  Of course in true Chuck form, he has agreed to participate.  This will help others in the future with their transplant process.  

Thank you for following our journey. 
 We are so blessed and love y’all.

Robyn and Chuck 


#iamadonor

#liverdonor

#givelife

#organdonations

#signupfororgandonation

#makeadifference





Newest Update

Journal entry by Robyn McDaniel

UPDATE Dec. 31, 2019 lunch time!! 

 

As 2019 comes to an end I wanted to update everyone on Chuck and his post-transplant progress.  I apologize for the delay in updating everyone.  

 

We are 3 months post-surgery.  Wow.  Where does the time go?  

Literally 3 months ago Chucks surgeons had just finished his an 8 ½ hour liver transplant surgery.  I sat there just looking at him knowing how blessed Chuck and our family was that he had given another opportunity to share more life with his family and friends. 

 

We continue to give thanks and know every day is a blessing and should not be taken for granted.  Tomorrow is not a given. 

 

This past month post-transplant Chuck has made progress in his recovery.  

He has had some unexplained pain so his transplant doctor sent him to an infectious disease doctor.  They are watching his incision area making sure he doesn’t get a hernia. Hernia surgery one of the worst they say.  

Some of his blood work is still not where they want it to be.  He hasn’t been able to gain much weight back, so his strength and endurance is weak.  We are continuing to work on that so he can go back to work in Feb.  

 

Chuck had an appointment with his endocrinologist recently and she has made some changes to his insulin shots. We are hoping to get his diabetes under control since this is why he got NASH in the first place.    

 

Chuck also met with his ophthalmologist in early December and they found that he has diabetic retinopathy in both eyes.  

This goes back to his diabetes and getting his glucose numbers under control.

 

Diabetic retinopathy involves the abnormal growth of blood vessels in the retina. Complications can lead to serious vision problems: Vitreous hemorrhage. 

Chronic high blood sugar levels cause changes that damage the tiny blood vessels in the retina. This causes these blood vessels to leak fluid or hemorrhage (bleed). Eventually, this leads to vision problems that cannot be corrected with eyeglasses or contact lenses.

 

 

Chuck is down to 16 meds a day.  WIN!!  This will more than likely be the new normal going forward.  

His color is back and that sparkle in his eyes is there.  He’s trying not to nap so he can sleep somewhat better at night.  

 

I am so proud of him and the progress he continues to make.  His commitment to getting stronger and healthier is so encouraging.   

 

We continue to pray for Chucks donor’s family.  We will be forever thankful to them. 

 

Going into 2020 we ask that you consider being an organ donor and sharing your wishes with your family.  

Brandon was an organ donor unfortunately he had passed and wasn’t found for several hours after his passing.  

Erik, our extended family member that passed was also an organ donor.  Erik was able to donate his heart, eyes and skin.  What an amazing gift Erik gave.  

 

Chuck and I want to Thank everyone for your continued prayers and support.  

 

We love y’all.. 

 

 

 

https://www.gofundme.com/manage/let039s-get-a-liver-for-chuck

 

 

#iamadonor

#liverdonor

#givealife

#organdonations

#signupfororgandonation

#makeadifference

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Chuck Stay Connected to Family and Friends

A $25 donation powers a page like Chuck's for two weeks.

If you donate by May 12, your gift will be doubled, up to $10,000, thanks to a gift from Living Water Foundation.

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top