Christy’s Story

Site created on November 6, 2021

Over the last six to twelve months, I’ve been struggling with bouts of unexplained neurological issues (which I’d naively assumed came from my decade-long journey with Lupus). However, on the evening of September 29, my precious fella found me unresponsive on the floor in our bedroom due to a seizure that neither one of us could explain. Over the past month, we’ve been going through the process of eliminating potential causes- and on November 4, I was diagnosed with a low-grade glioma brain tumor (stage 1-2). After we picked our jaws up off the floor, our neurosurgeon (David Baskin at Methodist Hospital) advised us that surgery would be my best option to avoid the tumor’s progression into full-blown glioblastoma. We’ve learned the tumor is beginning to cause partial complex seizure activity, which has and will increase in frequency the longer the tumor is in there. The prayer request is that the doctor will be able to access and completely remove the tumor, which is located in a deeper (and trickier) part of the brain. Luckily for us, Dr. Baskin seems to be a complete rock star and capable beyond anything we could have hoped for.

My main focus, aside from my recovery- is that the three most important people in my life (Webb, Mary B and Lila) are covered up in love and support by our village of friends and family. We’re under no illusion that we’ll do this perfectly, and ask for your grace and patience as we navigate our way through these uncharted waters. The good news is that we aren’t asking for grand gestures that will require a ton of time- we just need help with small things, such as picking up a child from tutoring or dropping them off at school, helping out with a homework assignment they’re struggling with, or sending a meal for our kids when we’ve had a late night at the hospital. I know these gestures will keep us afloat in the months to come.

As we all know, cancer affects more than just the person on treatment. And while it is difficult to ask for help- we don’t have a much of a choice at this point. The goal in creating this website is to keep you all updated straight from the source, and humbly ask for help where we need it through the attached calendar. These gestures will keep Webb from having to coordinate the moving parts of daily life, which can break one’s back in the midst of moments like this. His shoulders are broad, but this load will be more than any one person can carry alone.

***We will forever be indebted to Leta Shideler, Meghan Skeffington and Jessica Brazelton, who are working behind the scenes and coordinating calendars, managing school logistics- and being all-around heroes for us right now.***

“Therefore, since we have been justified through faith, we have peace with God through our Lord Jesus Christ, through whom we have gained access by faith into this grace in which we now stand. And we boast in the hope of the glory of God. Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance produces character; and character produces hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.” Romas 5: 1-5

Newest Update

Journal entry by Christy Jennings

On November 4, Webb and I sat down with my newly appointed neurosurgeon, and he walked us through recent MRI results. Within a few minutes, he pulled up my images, and circled a glowing mass located deep within my brain. It was a surreal moment, but we were grateful for his direct manner and path to move forward. He told us that while he believed this was a slow growing tumor, he wanted to proceed with surgery and remove it before the holidays. Despite the news, Webb and I felt a strange and inexplicable sense of peace settling into our bones. The reality check came later in the day, when against my better judgement, I spent 15 minutes researching the “low grade glioma tumor” our doctor believed I had in my brain. The more I learned, the more my heart sank. That night, I struggled to sleep- and ended up downstairs in my favorite chair to pray (and cry a little). Strangely, I didn’t feel the fear I thought I’d have given the circumstances we faced. What I did have was an aching grief for the life I’d pictured in my head, which I suddenly realized I’d taken for granted. I thought about the three beautiful people with whom I’ve made a life, and all the big and small moments I wanted to be a part of going forward. At some point in those early morning hours, the song “I Surrender All” came into my mind. It wasn’t some thundering, God-like voice, but I don’t think it came from me. I grabbed my AirPods and sat down to listen. Afterwards, in that peaceful space, wise words spoken to me almost a decade ago by my aunt Susan came to mind: “Darling, this is out of your pay grade.” And then another voice from the beloved pastor, Jim Jackson, who has always said: "Truth is self-authenticating. When you hear the truth, you know it's the truth." Even my mule-headed, stubborn ego could recognize the undeniable reality of my limitations in this moment. 

 We wanted to be honest with the girls about what we were facing, but knew it was too big a burden for them to carry without the support of our friends and family. We needed prayer… and help with the moving parts of our daily life because I was now suddenly unable to drive and facing long hours of testing at Methodist. In the days after our meeting with the neurosurgeon, time felt like it moved at a different pace. Moments somehow felt more beautiful and sacred, and previously unspoken expressions of love among family and friends simply flowed out without our normal protective armor or formalities. Telling all of you about what we were going through felt like hurling myself out of an airplane (which I have NEVER had a desire to do)… but I didn’t feel like we had a choice. We’ve been down the cancer road more than once with our parents, and knew from that experience how the minutia/scheduling of every day life can break one’s back when facing something that big. And because birds of a feather flock together- I knew my precious fella would break his back trying to carry the entire burden alone. 

 Through it all, Webb has been by my side. Somehow, he summoned a strength that was beyond anything I’ve ever witnessed in my life- but it wasn’t the kind of strength we see played out in the movies. This strength required absolute faith and trust- and was far more powerful because it was a lived-out expression of Godly love, as defined in the 13th chapter of Corinthians. His steady hand, profound devotion, and faith in me helped me find the courage I needed to calmly make hard decisions I never thought I’d have to face. He did the impossible and never attempted to fix or take control of what was in front of us (which has historically been our knee-jerk reaction when we’re afraid)… he simply cemented his feet alongside mine in solidarity. I only wish his mother and father were alive to witness their son in this difficult moment, because they would have been so proud. 

 Fast forward 10 days… we’re once again meeting with my neurosurgeon to go over the additional imaging they needed for the surgery. Webb and I sat frozen in disbelief as my doctor explained how that, after reviewing the more detailed scans with Methodist’s best neuroradiologists, he no longer believed the mass was a glioma tumor. Strangely, this news was more difficult to digest than the original meeting where we saw the first set of MRI’s… mainly because of the uncertainty it presented and the massive Brene Brown "vulnerability hangover" I felt for taking all of you down this roller coaster with us. I instantly shrank when I thought of how this would feel to all of you who’ve prayed for us, shuttled our kids and carried us with meals and encouragement. The path we’d begun to accept had changed in a way we never anticipated. Our doctor wants me to repeat the detailed imaging every 3 months for a year to make sure the area does not evolve into something else, but for now- surgery is off the table. We’re no longer facing the same prognosis, but because of the seizures, I’m still unable to drive. However, this time has taught us that, in the grand scheme of things, this is a small bump in the road and insignificant. As my precious dad always says, “God never wastes suffering.” We don’t why that area of my brain lit up, or what caused it… or if it will evolve. It’s unlikely. What we do know is that God was present in the midst of it all and continues to be… so we’ll continue to trust in whatever path He has planned for us. As for me, I find myself praying the prayer my grandfather always said before going to bed at night, which was “Lord, please give me the strength to accept Your will.”

 When I created a CaringBridge site for myself, I imagined it being a simpler way to coordinate the handful of people who’d be willing to respond and help us. I also wanted to inform those with whom I have responsibilities so they could plan around my absence. And if I’m really honest, I wanted to be in charge of the narrative (hello, control issues) so that our experience didn’t end up being something it wasn’t. In weaker moments, I imagined us becoming a topic of conversation… and felt like curling up in a ball from the unwanted exposure. What I didn’t expect was the OVERWHELMING love and support from so many people around us. It’s created a profound gratitude, and has humbled us in a way I don’t yet know how to express. Every single one of you have been the hands and feet of Jesus for us during this time, and we will never forget how you’ve carried us. We love you.
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